Calling all Fibromites!!
Do you want to help spread awareness of this dreadful condition? Do you, or someone you know have Fibromyalgia? The Fibroduck Foundation is a UK based charity with the aim of raising awareness and funds to pay for research into Fibromyalgia. If you are interested in helping to spread the word, you can read on.
My name is Joey, and I have Fibromyalgia. I have recently started to volunteer for The Fibroduck Foundation. The idea started with the plan to send one million ducks worldwide to raise awareness of Fibromyalgia. They were the plain yellow ducks that had spots to highlight the tender points people with Fibro have. In 2011, The Fibroduck Foundation was launched and the plan to raise enough to fund a research program into Fibro was started. They need £26,000 and have raised over £1,000 so far. My band - The Rocking Dodars - released a single on May 12th 2012 with 100% of the proceeds going to The Fibroduck Foundation. However, I want to do more to help raise awareness. This is where you all come in.
Would you like to appear on their website? To be interviewed about what it’s like to have Fibro and how it impacts your life? You don’t have to use your name, you can use just an initial or even an alias - no one will know how to contact you but me, and I will not share that information with anyone without your prior consent. If you’re interested in being interviewed, please email me at joeypaul@fibroduckfoundation.com
Do you find that people see you as a disease? As a person with Fibro? Do you wish they would also see who else you were? If you’d like to take part in another way to raise awareness, please read on. I will be starting to do graphics with the term "I have Fibro, but it’s not who I am” to feature on the Fibroduck Foundation website. If you want to use your name, you are welcome to, again you can use an alias or just an initial. You can chose to include a photo of yourself (please resize to 150 x 150 pixels) but it is not required. You will need to supply me with SIX ways in which you identify yourself. In my case, it would be as a writer, a student, a musician, a friend, disabled and an aunt. You can choose whichever ones you want and again, any identifying information will be kept confidential unless you say otherwise. If you wish to take part in this please email me your list at joeypaul@fibroduckfoundation.com
Although The Fibroduck Foundation is based in the UK, please do not think you need to be based here too. In the time of the internet and raising awareness, nationality does not matter. We’re looking to raise awareness all over the world. Please feel free to share this with anyone you feel would be interested. And if you have any questions, you can email me at the above address.
Thanks for your time
Joey
My name is Joey, and I have Fibromyalgia. I have recently started to volunteer for The Fibroduck Foundation. The idea started with the plan to send one million ducks worldwide to raise awareness of Fibromyalgia. They were the plain yellow ducks that had spots to highlight the tender points people with Fibro have. In 2011, The Fibroduck Foundation was launched and the plan to raise enough to fund a research program into Fibro was started. They need £26,000 and have raised over £1,000 so far. My band - The Rocking Dodars - released a single on May 12th 2012 with 100% of the proceeds going to The Fibroduck Foundation. However, I want to do more to help raise awareness. This is where you all come in.
Would you like to appear on their website? To be interviewed about what it’s like to have Fibro and how it impacts your life? You don’t have to use your name, you can use just an initial or even an alias - no one will know how to contact you but me, and I will not share that information with anyone without your prior consent. If you’re interested in being interviewed, please email me at joeypaul@fibroduckfoundation.com
Do you find that people see you as a disease? As a person with Fibro? Do you wish they would also see who else you were? If you’d like to take part in another way to raise awareness, please read on. I will be starting to do graphics with the term "I have Fibro, but it’s not who I am” to feature on the Fibroduck Foundation website. If you want to use your name, you are welcome to, again you can use an alias or just an initial. You can chose to include a photo of yourself (please resize to 150 x 150 pixels) but it is not required. You will need to supply me with SIX ways in which you identify yourself. In my case, it would be as a writer, a student, a musician, a friend, disabled and an aunt. You can choose whichever ones you want and again, any identifying information will be kept confidential unless you say otherwise. If you wish to take part in this please email me your list at joeypaul@fibroduckfoundation.com
Although The Fibroduck Foundation is based in the UK, please do not think you need to be based here too. In the time of the internet and raising awareness, nationality does not matter. We’re looking to raise awareness all over the world. Please feel free to share this with anyone you feel would be interested. And if you have any questions, you can email me at the above address.
Thanks for your time
Joey