May 04, 2024 07:28
Living with cancer
On March 3, 2024 I was sent to the ER. It was here that they thought I had a gallbladder issue. I had originally gone to the immediate care thinking I had IBS issues. They ran a CAT scan. They said they needed to do a further look so they took an x-ray and they did an ultrasound. They found some questionable things. I was sent home and rapidly got worse. The next day they called saying I needed to reach out to oncology. After trying to get a hold of oncology for a week, finally, somebody told me I needed to just go to my primary care physician. But that was a hot mess in itself. It was a two week wait. Then I sat in the office for an hour to be told to come back next week. I came back the following week, was treated like some sort of king. And I’ve never seen My doctor Looks so scared. I have, “cancer”. I was told to schedule a colonoscopy, But that was a task. I informed the gastroenterology office that I had to go to a funeral. But I would be out of town that week. They tried to schedule me a surgery consultation. I let them know again. I was not available due to having to settle my grandparents estate with my family. Next appointment “isn’t for three weeks”, They told me. Two weeks go by, in my pain is getting much much worse. Mind you already told you my pain was getting worse just days after that appointment in March. I reach out to the nurse at the gastroenterology office to let her know that I’m on a decline. They noticed that I have the wrong appointment altogether. I was never scheduled a colonoscopy. I was scheduled a surgery consultation. They get me the proper appointment with haste. But it’s too late and I was hospitalized.
I stayed in the room 1575 in the Prentice Building of Northwestern memorial hospital. They made up for all the bad stuff. Those nurses were so wonderful. The technicians were great. And the doctors were also awesome. My favorite being Dr. Singh. Her rhythm in her style was just what I needed. It was in the hospital that I got my diagnosis. I have a high-grade Neurendocrin Carcinoma aka high grade NET. There’s little support for it cause, well most of the people die before they can be diagnosed. Dunno why (sarcasm)
They started chemotherapy 4/19 after giving me my diagnosis 4/18. I am hopeful for a clinical. And praying for a Jesus Miracle. That’s all for now. Next, my headspace.
Skål,
Jimboblove
neurendocrin carcinoma,
cancer