Feb 11, 2010 12:18
I do not understand why people are stupid. Why do people need to make it SO hard for my kid to get what he needs???? Xavier keeps getting sick. I was told that if he continued to get sick, he'd need IVIG. I can't find my copies. The immunologist will not work with his GI dr cause he doesn't believe Xavier has a GI issue.... HELLO, biopsys don't tell you anything? Seriously. So my GI doesn't want us seeing the immunologist anymore. SO, what are our options? There are no other immunologists in Oregon for us to see apparently they all left - with the exception of the Dr we had at Kaiser, however we can't go there, I don't have Kaiser anymore, and OHP won't cover Kaiser! : / What are we supposed to do? I have a letter from his immunologist that states if Xavier gets sick with an infection such as pneumonia or whatever like that - he needs to start a course of IVIG and see an immunologist... but the pediatrician said he's not sick enough... wtf is he supposed to be dying before he gets what he needs? The immunologist we saw this year said if he had another sinus infection we were gonna start IVIM but we can't go to him, cause he won't care for him with the GI condition too.
UGH sorry if this post is all over the place....
I'm just venting, and VERY irritated.
health,
xavier