We are turning into a Reality Show
Guys,
I know a few of you have asked me to update how things are. I always find it tricky because I don't want to turn my journal Emo. Just like in my life, I use humor to lessen the gravity of the situation. I still have my humor, but the rest of my body seems to be slipping away.
I owe so many posts to so many people, I need to recount recent events and express my gratitude to everyone for their fellowship. My friends have blessed me with artwork, costumes, jewelry, a quaffle, a prayer shawl and quilt, dozens of cards and so much support for Project Fiver and the ALS Walk. My room is full of all these things, and lately I've been feeling somewhat distressed over my worries that you all think I might not be appreciative. Every little thing that you all do helps me, from playing Scrabble on Facebook to sending me T-Shirts to emails and phone calls and even the Applications sent to me on FaceBook help me through the day. I struggle every day to speak and my biggest fear is that I will soon have no voice in which to thank you all.
Saturday marks the one year anniversary of my diagnosis. Back then, I thought I had at least another year of walking with a cane. I did not realize that it would progress this quickly. Right now, things are very chaotic around here. I have Pneumonia, my mother has bronchitis, my son has a sinus infection, but the Coup de Grace this week was my son refusing to eat dinner and running off. My parents and Chris could not find him anywhere, and the front door had been unlocked. He was only wearing his pajamas and it was freezing outside. So after 30 minutes of searching the house, we had no choice but to call the police. We had four police cars show up, and during all that time, I sat in my chair, crying my heart out. When it got to be over an hour with no sign, the whole neighborhood joined in the search. Eventually, he snuck back into the house and the officer found him. I thought nothing would top my ALS, but thinking your child is lost puts everything else on the back burner. Keep my little guy in your thoughts, as he's come to realize that Mommy's disease is Terminal. He is seeing a psychologist in Grief Counseling, and he is very mad at the world right now.
It's been a hard week, with the layoffs at my dad's company (He's safe this round), a house that is still on the market over a year later and a home that looks more like the set of "ER" with all the medical equipment.
So there it is folks, an update on us. To read everyone else's LiveJournal, I know that we are by far not the only ones hurting. I still want you to know that I do read your Journals. Sometimes at night, Chris can help me type up responses, but not always.
Now I can't leave y'all on such a serious note. I did manage to acquire an animated Christmas Flamingo for our front yard, therefore enabling us to stake the claim of "The Griswolds of Summer Hollow Trail". (If the four cop cars in our driveway didn't do that already.)
~Mel
I know a few of you have asked me to update how things are. I always find it tricky because I don't want to turn my journal Emo. Just like in my life, I use humor to lessen the gravity of the situation. I still have my humor, but the rest of my body seems to be slipping away.
I owe so many posts to so many people, I need to recount recent events and express my gratitude to everyone for their fellowship. My friends have blessed me with artwork, costumes, jewelry, a quaffle, a prayer shawl and quilt, dozens of cards and so much support for Project Fiver and the ALS Walk. My room is full of all these things, and lately I've been feeling somewhat distressed over my worries that you all think I might not be appreciative. Every little thing that you all do helps me, from playing Scrabble on Facebook to sending me T-Shirts to emails and phone calls and even the Applications sent to me on FaceBook help me through the day. I struggle every day to speak and my biggest fear is that I will soon have no voice in which to thank you all.
Saturday marks the one year anniversary of my diagnosis. Back then, I thought I had at least another year of walking with a cane. I did not realize that it would progress this quickly. Right now, things are very chaotic around here. I have Pneumonia, my mother has bronchitis, my son has a sinus infection, but the Coup de Grace this week was my son refusing to eat dinner and running off. My parents and Chris could not find him anywhere, and the front door had been unlocked. He was only wearing his pajamas and it was freezing outside. So after 30 minutes of searching the house, we had no choice but to call the police. We had four police cars show up, and during all that time, I sat in my chair, crying my heart out. When it got to be over an hour with no sign, the whole neighborhood joined in the search. Eventually, he snuck back into the house and the officer found him. I thought nothing would top my ALS, but thinking your child is lost puts everything else on the back burner. Keep my little guy in your thoughts, as he's come to realize that Mommy's disease is Terminal. He is seeing a psychologist in Grief Counseling, and he is very mad at the world right now.
It's been a hard week, with the layoffs at my dad's company (He's safe this round), a house that is still on the market over a year later and a home that looks more like the set of "ER" with all the medical equipment.
So there it is folks, an update on us. To read everyone else's LiveJournal, I know that we are by far not the only ones hurting. I still want you to know that I do read your Journals. Sometimes at night, Chris can help me type up responses, but not always.
Now I can't leave y'all on such a serious note. I did manage to acquire an animated Christmas Flamingo for our front yard, therefore enabling us to stake the claim of "The Griswolds of Summer Hollow Trail". (If the four cop cars in our driveway didn't do that already.)
~Mel