Rainy days
Today it's pouring rain. I like the rain, but only when im at home, watching it out the window when I know that im safe off the roads and my loved ones are safe, so im gonna be freaking out by the time jason gets home at 5.30pm. People here dont know how to drive in the rain. Im not saying that im a pro, but i learned to drive in Scotland, and had to drive in rain, sleet and snow. So i know when to slow down and shit. But people here, they all have big SUV's and they don't care about us little honda civic people, that will get crushed by them. They never slow down, they drive as fast as they would on a dry day and they dont think that the sun had melted the oil on the roads. So they slip and slide and crush us little people. So I just hope Jason makes it home safe, as well as myself since im at work right now.
Anyway, enough of that. A special friend of mine is sick, right now, you know who you are, and I had to just send her something as a little pick me up. So I hope it gets to the right place since its been a while since i updated addresses. So thats my good deed for the day. I hope she likes what i sent her, It wasnt super expensive, but i guess it's the thought that counts, right?
So I don't know if im being dramatic or not, but I came off my Plaquinil for my surgery cuz there is a slight chance of staph infection after that kind of surgery. I decided with Jasons help to stay off it longer due to the swine shit going around. There have been 5 cases in my county and one was diagnosed at my own doctors. So when I went there today i was freaked out.
So yeah I went to the dr today, he weighed me....175lbs. Granted I had my boots and clothes on, but still thats a lot, especially since i was 110lbs this time last year. Yeah a lot of that was to do with messing with my medication...but still...to gain that much weight in such a short amount of time isnt cool. So it seems my pituitory gland might be overactive. so im going for blood work, that will also update me on how the lupus is going. When I went to Scotland in January, my dad had just had surgery, and he couldnt lift the luggage, so i had to and now i have a slipped disc or pinched a nerve so i got a steroid shot for that.
EDIT:- I had to cut this short yesterday and didn't know how to save it, so im just finishing what I was saying, cuz it ended kinda abruptly.
Ok, so where was I? So I was at the dr, just my regular every 2 month visit. Im meant to go every month, but he doesnt take my insurance and I adore him so im not changing doctor although jason has been trying to get me to change for years, but he understands that he knows my history, he knows my diseases and he knows what needs done when, i dont want to start off from scratch with someone else and try to explain EVERYTHING all over again. So basically my lower back has been in torture since the beginning of Jan. Pretty much from the day I arrived in Scotland on Jan 9th. I blamed it on the bed Jason and I had in the apartment, I first complained of it my second night there, my first night I was so jetlagged I just slept without waking up. But everyday after that I was in severe pain. Then when Jason joined me half way through the holiday, he agreed that the bed was too hard and his back hurt too. So I fully expected to get home into my own bed and sleep like a baby....not so. Instead I would wake up 3 or 4 times a night, laying on my back in so much pain that I had to wake Jason up to ask him to pull my arms and help me on to my side. Then in the morning i would have to have him help me get up off the bed. The pain is beyond torture. Its the worst pain ive ever felt, and thats saying something for me who feels pain everyday. Once im up and walking around for 10 mins the pain goes away completely. I don't have any problems with it at all. Until I wake up the next night in agony again. So the dr said it's either a pinched nerve or a slipped disk. Neither one is particularly good. But at least i know or hope it's not my lupus attacking anything in my back nerves or anything. Although ive to go for blood work, so that will answer that question. So I got a steroid shot for it, which is cool cuz although it killed my arm, it worked wonders for my back last night, i purposely slept on my back when i went to sleep and it didn't hurt at all. Although I did have restless legs all night, thats nothing new, it comes and goes every so often. I don't know how long a steroid shot lasts, and I also dont know if it will last less time due to it fixing my back and also helping my fibromyalgia. So we'll see. He upped my Lyrica as well. I told him i did not want more pain pills and so im still just on my time release morphine 3 times a day, and my lorcets for breakthrough pain.
I need to go see my endocrinologist because of my lactating and possible over active pituitory gland. But he is not covered by insurance and he's $500 a visit. Hes really good though and knows hes expensive so once you see him once he does a lot of the other 'visits' by telephone call. So I told my dr i couldnt afford to go to him at this point, but also said i couldnt budge the weight that the pituitory is causing, so he said that if my blood work comes back with a consistant diagnosis on my pituitory gland he will write me the prescription for the meds rather than spend money to see the endcrin guy. So thats good. Also, I went to pick up my plaquinil the other say at the pharmacy in safeway, even though im not taking it for now cuz thats the one that kills my immune system, i still picked it up so i would have it for when i do go back on it. And it was free? I was like wtf? Now the way our plan was set up, we had a $1,500 deductable between both of us, and an HSA card to use to meet the deductable. So last week i tried using the card and it got declined and so I was shitting it thinking that now i had to pay for all my stuff and then get claim forms and submit every bill and eventually get paid, well i dont know if its cuz im on cobra, but i went to pick the pills up and they were free i asked the pharmacist and she told me i reached my deductable and so everything was free. So I began calling in as many refills as possible so i could get them before my insurance changes May 6th. Then after talking to Jason, we decided to keep cobra since we're paid up till the end of May, and just give our new cards June 1st. So my doctor basically told me to call the pharmacy in a couple of weeks, tell them that he had upped my other medications and that I would need a new prescription for them which means i'll get them free. Also, 2 weeks ago i picked up my Valtrex and it cost $400 I nearly died. but i had to get them cuz I had an outbreak from hell, i hadnt had one that bad since i fist contracted herpes. So now im thinking I can have him write me another script for that and get it filled while it's free. So thats the good news, thats another reason i love my doctor, he understands about things being expensive and tries to help with it. So he really is an understanding dr. So I don't wanna lose him. I pay $150 per visit to him, but thats every 2 months, so it works out at $75 a month, which is $40 or so more than a co pay...i know it all adds up, but with all the samples he gives me, it works out in my favour, cuz he really is great. Anyway, thats all I have on my day yesterday. I did up the lyrica and felt a little dizzy he told me that it was normal because i was taking it along with narcotics, and so it would eventually stop i just had to give it time. So thats that.
Last night Jason got home from work, I could tell smething was a little off with him. I asked him what was wrong, he said nothing. The rain was so bad we didn't want to go out and drive to get dinner, so we called in chinese to be delivered. He didn't want his usual dish and just kinda went along with what I wanted and he's not normally like that, again i asked what was up, and he said nothing. I said he seemed like he was in a bad mood, he said that yea he kinda was. I asked why he just said that he woke up on the wrong side of the bed. So we left it like that, so I was kinda on eggshells with him all night, cuz I didn't want him losing his temper, although he rarely ever does, but i didn't want that. So we had dinner, watched a couple of old reruns of 'House' that we hadnt seen and then i wanted to watch something on court TV (Now TruTV) i love real crime stories, he went into the office and went online. So I felt bad that he was bored and so i was a little tired from taking the lyrica and so I just brushed my teefs and went to bed. He tucked me in and i don't remember what time he came to bed at i must have been out cold. I woke up with my legs jumping though at around 2am and then again at 4 am and then I woke up, saw the clock on his side of the bed it said 6.15am and then i layed back down and shut my eyes, i felt his hand touch my leg, so i opened my eyes, asked if he was ok. he said he was and he was just makin sure i was ok, cuz my legs had been jumping ALL NIGHT! I asked if i kept him up, he said no, but i think he was trying to be polite. Anyway, we both just got up after that, I took my shower and got ready for work, I actually put make up on....oh thats a first for a long time for work, normally i dont give a shit, put my hair back in a ponytail and no make up, but whatever.
And so far my day has been ok....Work is quiet, which is good and bad, but it gives me a chance to type this, haha. Im about to head home in 30mins or so. Jason called asking where the laundry room key was, I accidently left it in my jeans, so that means he's doing a laundry which rocks, cuz its less for me to do. And tonight we're either going to rent a dvd, or see if theres something on Pay per View, and pick up dinner at CPK....im going for the garlic chicken pizza.
So thanks all for reading, I know this is a long one!!!
Anyway, enough of that. A special friend of mine is sick, right now, you know who you are, and I had to just send her something as a little pick me up. So I hope it gets to the right place since its been a while since i updated addresses. So thats my good deed for the day. I hope she likes what i sent her, It wasnt super expensive, but i guess it's the thought that counts, right?
So I don't know if im being dramatic or not, but I came off my Plaquinil for my surgery cuz there is a slight chance of staph infection after that kind of surgery. I decided with Jasons help to stay off it longer due to the swine shit going around. There have been 5 cases in my county and one was diagnosed at my own doctors. So when I went there today i was freaked out.
So yeah I went to the dr today, he weighed me....175lbs. Granted I had my boots and clothes on, but still thats a lot, especially since i was 110lbs this time last year. Yeah a lot of that was to do with messing with my medication...but still...to gain that much weight in such a short amount of time isnt cool. So it seems my pituitory gland might be overactive. so im going for blood work, that will also update me on how the lupus is going. When I went to Scotland in January, my dad had just had surgery, and he couldnt lift the luggage, so i had to and now i have a slipped disc or pinched a nerve so i got a steroid shot for that.
EDIT:- I had to cut this short yesterday and didn't know how to save it, so im just finishing what I was saying, cuz it ended kinda abruptly.
Ok, so where was I? So I was at the dr, just my regular every 2 month visit. Im meant to go every month, but he doesnt take my insurance and I adore him so im not changing doctor although jason has been trying to get me to change for years, but he understands that he knows my history, he knows my diseases and he knows what needs done when, i dont want to start off from scratch with someone else and try to explain EVERYTHING all over again. So basically my lower back has been in torture since the beginning of Jan. Pretty much from the day I arrived in Scotland on Jan 9th. I blamed it on the bed Jason and I had in the apartment, I first complained of it my second night there, my first night I was so jetlagged I just slept without waking up. But everyday after that I was in severe pain. Then when Jason joined me half way through the holiday, he agreed that the bed was too hard and his back hurt too. So I fully expected to get home into my own bed and sleep like a baby....not so. Instead I would wake up 3 or 4 times a night, laying on my back in so much pain that I had to wake Jason up to ask him to pull my arms and help me on to my side. Then in the morning i would have to have him help me get up off the bed. The pain is beyond torture. Its the worst pain ive ever felt, and thats saying something for me who feels pain everyday. Once im up and walking around for 10 mins the pain goes away completely. I don't have any problems with it at all. Until I wake up the next night in agony again. So the dr said it's either a pinched nerve or a slipped disk. Neither one is particularly good. But at least i know or hope it's not my lupus attacking anything in my back nerves or anything. Although ive to go for blood work, so that will answer that question. So I got a steroid shot for it, which is cool cuz although it killed my arm, it worked wonders for my back last night, i purposely slept on my back when i went to sleep and it didn't hurt at all. Although I did have restless legs all night, thats nothing new, it comes and goes every so often. I don't know how long a steroid shot lasts, and I also dont know if it will last less time due to it fixing my back and also helping my fibromyalgia. So we'll see. He upped my Lyrica as well. I told him i did not want more pain pills and so im still just on my time release morphine 3 times a day, and my lorcets for breakthrough pain.
I need to go see my endocrinologist because of my lactating and possible over active pituitory gland. But he is not covered by insurance and he's $500 a visit. Hes really good though and knows hes expensive so once you see him once he does a lot of the other 'visits' by telephone call. So I told my dr i couldnt afford to go to him at this point, but also said i couldnt budge the weight that the pituitory is causing, so he said that if my blood work comes back with a consistant diagnosis on my pituitory gland he will write me the prescription for the meds rather than spend money to see the endcrin guy. So thats good. Also, I went to pick up my plaquinil the other say at the pharmacy in safeway, even though im not taking it for now cuz thats the one that kills my immune system, i still picked it up so i would have it for when i do go back on it. And it was free? I was like wtf? Now the way our plan was set up, we had a $1,500 deductable between both of us, and an HSA card to use to meet the deductable. So last week i tried using the card and it got declined and so I was shitting it thinking that now i had to pay for all my stuff and then get claim forms and submit every bill and eventually get paid, well i dont know if its cuz im on cobra, but i went to pick the pills up and they were free i asked the pharmacist and she told me i reached my deductable and so everything was free. So I began calling in as many refills as possible so i could get them before my insurance changes May 6th. Then after talking to Jason, we decided to keep cobra since we're paid up till the end of May, and just give our new cards June 1st. So my doctor basically told me to call the pharmacy in a couple of weeks, tell them that he had upped my other medications and that I would need a new prescription for them which means i'll get them free. Also, 2 weeks ago i picked up my Valtrex and it cost $400 I nearly died. but i had to get them cuz I had an outbreak from hell, i hadnt had one that bad since i fist contracted herpes. So now im thinking I can have him write me another script for that and get it filled while it's free. So thats the good news, thats another reason i love my doctor, he understands about things being expensive and tries to help with it. So he really is an understanding dr. So I don't wanna lose him. I pay $150 per visit to him, but thats every 2 months, so it works out at $75 a month, which is $40 or so more than a co pay...i know it all adds up, but with all the samples he gives me, it works out in my favour, cuz he really is great. Anyway, thats all I have on my day yesterday. I did up the lyrica and felt a little dizzy he told me that it was normal because i was taking it along with narcotics, and so it would eventually stop i just had to give it time. So thats that.
Last night Jason got home from work, I could tell smething was a little off with him. I asked him what was wrong, he said nothing. The rain was so bad we didn't want to go out and drive to get dinner, so we called in chinese to be delivered. He didn't want his usual dish and just kinda went along with what I wanted and he's not normally like that, again i asked what was up, and he said nothing. I said he seemed like he was in a bad mood, he said that yea he kinda was. I asked why he just said that he woke up on the wrong side of the bed. So we left it like that, so I was kinda on eggshells with him all night, cuz I didn't want him losing his temper, although he rarely ever does, but i didn't want that. So we had dinner, watched a couple of old reruns of 'House' that we hadnt seen and then i wanted to watch something on court TV (Now TruTV) i love real crime stories, he went into the office and went online. So I felt bad that he was bored and so i was a little tired from taking the lyrica and so I just brushed my teefs and went to bed. He tucked me in and i don't remember what time he came to bed at i must have been out cold. I woke up with my legs jumping though at around 2am and then again at 4 am and then I woke up, saw the clock on his side of the bed it said 6.15am and then i layed back down and shut my eyes, i felt his hand touch my leg, so i opened my eyes, asked if he was ok. he said he was and he was just makin sure i was ok, cuz my legs had been jumping ALL NIGHT! I asked if i kept him up, he said no, but i think he was trying to be polite. Anyway, we both just got up after that, I took my shower and got ready for work, I actually put make up on....oh thats a first for a long time for work, normally i dont give a shit, put my hair back in a ponytail and no make up, but whatever.
And so far my day has been ok....Work is quiet, which is good and bad, but it gives me a chance to type this, haha. Im about to head home in 30mins or so. Jason called asking where the laundry room key was, I accidently left it in my jeans, so that means he's doing a laundry which rocks, cuz its less for me to do. And tonight we're either going to rent a dvd, or see if theres something on Pay per View, and pick up dinner at CPK....im going for the garlic chicken pizza.
So thanks all for reading, I know this is a long one!!!