blah de blah
So I actually didn't want to post too much of the im sick stuff on here after reading my old posts and seeing how pathetic and whiney i was. But i went to the dr yesterday thats dealing with my bowel issues and ive to have a Gastroscopy done on May 4th. Its basically where they put an electric cautery wire with a camera on it down your upper intestine and look at whats going on. This is to deal with my stomach pains which i used to think were caused by being alergic to beef and other red meats, and ive had it since I was 16, at least thats the first time i ever went to hospital aboot it. When I came to the US, I got send for one of those Birium drink x-rays or whatever and the dr said i had a small ulcer but nothing to worry about and that it would possibly go away on its own. Well im still having the pains, i get them a few times a week and they can last up to 2 hours at a time. Because I do take Lorcet pain meds, I try to take one of those when it comes on and it does help it. But sometimes it doesnt and I don't wanna be like my dad and not get it sorted oot and then one day have 3 feet of my colon cut oot. So this will be able to tell them if the ulcer has grown, or if theres something else there and they can biopsy anything that they see as abnormal. Because of my lupus and my myriad of medication they think its safer to do it in the hospital rather than in the office. I need to be put to sleep by the anistesiologist and he/she will know how much I will need due to my medication that im taking. Ive to be there at 10am, and I should be done about noon'ish. I think the actual surgery only takes about 45 mins, but they have to have me do paperwork and get my IV all hooked up and shit. Im so tired of having these surgeries, it feels like I have 1 every year at least. Last year it was surgery on my uterus and this year its on my upper intestine. Then after that they might still have to do a colonoscopy, to find oot whats going on down in my bowels as they have diagnosed me as having sever chronic constipation.
So for now im on a nice mix of 5 capfulls of miralax to get my bowels going, and then after a few days i can cut it to 4 for a few days and then 3 and so on until im down to about 1 and a half. It's miserable though im housebound. Im scared to go oot other than to work incase i shit myself, cuz thats whats happened in the past. Not like a big shit on my pants, but just some wetness and it's all very gross. At night I wear 'depends' incase i fart during the night and carry through. Then because it makes me go about 5 or 6 times a day once it starts working, im in complete agony from wiping all the time. It is probably the most miserable thing ive had to deal with in a long time. The other option is to go to UCSF to get tests run, blood tests and also tests of my bowels, spinkter, and the muscles around my bowels, check that the right ones are relaxing for a bowel movement and the right ones are constricting for a bowel movement. I don't wanna do that cuz it sounds like a lot of work and tests cost money, even with insurance, so I don't wanna do that till i absolutely HAVE to. So in the meantime, I will do the powder and see what happens, I'll pick up some diaper rash cream to see if that takes the sting outta my bum from wiping.
My only other concern with the surgery is that im on Plaquinil, and its a medication that attacks your immune system, to slow down the lupus from attacking my organs and such, but it leaves you open to virus' and infections. So I don't want to end up with some crazy infection from the surgery which is a common surgery and not a big deal at all...but it's rare for me to have a procedure done and not have any complications either due to my medication or my lupus. So we'll just have to see. Im sure this is going to be more money to add to the $3,000 that im already paying off to the hospital every month.
Someone find a 'cure all' pill that i can take that will fix all my ailments and let me live like a normal healthy 30 year old....please?
So for now im on a nice mix of 5 capfulls of miralax to get my bowels going, and then after a few days i can cut it to 4 for a few days and then 3 and so on until im down to about 1 and a half. It's miserable though im housebound. Im scared to go oot other than to work incase i shit myself, cuz thats whats happened in the past. Not like a big shit on my pants, but just some wetness and it's all very gross. At night I wear 'depends' incase i fart during the night and carry through. Then because it makes me go about 5 or 6 times a day once it starts working, im in complete agony from wiping all the time. It is probably the most miserable thing ive had to deal with in a long time. The other option is to go to UCSF to get tests run, blood tests and also tests of my bowels, spinkter, and the muscles around my bowels, check that the right ones are relaxing for a bowel movement and the right ones are constricting for a bowel movement. I don't wanna do that cuz it sounds like a lot of work and tests cost money, even with insurance, so I don't wanna do that till i absolutely HAVE to. So in the meantime, I will do the powder and see what happens, I'll pick up some diaper rash cream to see if that takes the sting outta my bum from wiping.
My only other concern with the surgery is that im on Plaquinil, and its a medication that attacks your immune system, to slow down the lupus from attacking my organs and such, but it leaves you open to virus' and infections. So I don't want to end up with some crazy infection from the surgery which is a common surgery and not a big deal at all...but it's rare for me to have a procedure done and not have any complications either due to my medication or my lupus. So we'll just have to see. Im sure this is going to be more money to add to the $3,000 that im already paying off to the hospital every month.
Someone find a 'cure all' pill that i can take that will fix all my ailments and let me live like a normal healthy 30 year old....please?