Putting the T back on the shelf for awhile...

Mar 09, 2011 01:21

I went to the hematologist this morning thinking we where going to do a phlebotomy (taking a unit of blood out), and found out my hematologist is a Jack Wagon!


Well the hematologist walks in and tells me there is no point in taking a unit of blood out because that would not solve anything. He said my veins are not appropriate to take blood out once a week and there is no point in putting in a central line in to do phlebotomies once a week. He told me I would have to have phlebotomies for the rest of my life. He said I have dangerously high Hematocrit (for a woman he had to add) it is 55.1%. I am at very high risk of stroke and heart attack. He told me he had a bio man on T the other day with a hematocrit of 58% and he had a stroke. Then he gave me 3 options:
1: Stop testosterone for the rest of my life. (Which he strongly recommended)
2: Lower my T and do phlebotomies the rest of my life, but I would have to find another doctor.
3. Do nothing about it and die really young.

I asked him about a hysterectomy and lowering my T. He said there is no way that would cure anything! He said to me, “You should just go off testosterone and go see a therapist and get threw your issues of being a women!” At that point I knew there was no point in talking to him. The first time I saw him, he was being lame about me being FTM too. So I told him my 4th option was to get a second opinion! I sat there while he recorded his dictation. That was not pleasant at all! I asked him to make me copies of everything that was in my folder and he had to tell me that I could come back in 6 weeks with my decision! So he let me leave his office with a hematocrit of 55.1 and did not do a thing about it!

I was so pissed off and I went to my primary doctors office and they got me in right away. My primary is an awesome doctor! We talked about the hematology appointment and what my options are. He told me to hold on a minute and he grabbed the OBGYN. Both came back in the room. I had to explain to the OBGYN about being FTM, he just wanted to know, he was clueless. He asked me if I was happy being a male and I told him yes. I told both of them the only reason I am scared to go off T is I don’t want my period back! The OBGYN said, “Well I guess we need to get your hematocrit down and give you a hysterectomy!” I told him I am sure I would have to pay out of pocket for it. He said there is no way, he will have one of his girls work on the insurance part of it.

They both think I need a phlebotomy so they are going to talk to the hematologist about it. My primary put me on some high blood pressure meds in the time being to lower my stroke risk. They took me off T and I have an appointment with both in 2 weeks to get on meds to make sure my period doesn’t come back before my hysterectomy.

I have no clue about how I feel about not being on T. I have been on it for over 9 years so only my fat will move back I am assuming. I still can not believe the attitude of the hematologist!

So what do they have to cut you open for a hysterectomy now-a-days?

t-giving blood, surgery-hystos, t-stopping

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