I've been dealing with some medical issues the past few months, and I think I know enough now about what's going on to talk about it now
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The worst part of it all was getting the initial diagnosis, because my original doctor should be fired. He left me the news in a voicemail, just stating that my aorta was quite enlarged and that I needed to see a surgeon. Scared the shit out of me.
I'm a lot less worried now; the surgeon I saw is fantastic, along with the genetic counselor I went to see. They did a great job of making sure I was aware of everything regarding it, and especially that I'm not in any immediate danger.
That reminds me; I meant to ask her and forgot if it could be causing/related to my back pain issues I've had the past couple years, I should follow up on that.
I'm sorry to hear that you're having to go through something similar, but I hope whatever the result ends up being it becomes helpful. While getting the Marfans diagnosis did freak me out some for about an hour, it's also good to know why I have these issues and what is causing them, and what it means for the future.
I don't think I still have your IM; I'm sure I have your email somewhere, as I never clear out my sent folder so it's got over a decade of stuff in it still. My IM name is still Garethaphrael, I've never gotten around to changing it to anything else.
I'm a lot less worried now; the surgeon I saw is fantastic, along with the genetic counselor I went to see. They did a great job of making sure I was aware of everything regarding it, and especially that I'm not in any immediate danger.
That reminds me; I meant to ask her and forgot if it could be causing/related to my back pain issues I've had the past couple years, I should follow up on that.
I'm sorry to hear that you're having to go through something similar, but I hope whatever the result ends up being it becomes helpful. While getting the Marfans diagnosis did freak me out some for about an hour, it's also good to know why I have these issues and what is causing them, and what it means for the future.
I don't think I still have your IM; I'm sure I have your email somewhere, as I never clear out my sent folder so it's got over a decade of stuff in it still. My IM name is still Garethaphrael, I've never gotten around to changing it to anything else.
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