Mar 01, 2010 15:57
I'm in the infusion room. I'm getting some remicade... Don't know when my next infusion will be. So... Semi good news.
I guess I can describe what's been going on since I have some time.
My psoriasis has spread by leaps and bounds. Never in my life has it been so bad. It's everywhere now... Even a little on my face. Hands. Everywhere. Because of the flareups, it is too painful to work or go to school, so everything has been dropped. It is impossible for me to move without stretching a lesion area. So movement is very limited by my skin now, not my joints.
Some students have been coming to my place for help... I'm very touched that they care for me and respect me as a teacher, even if daytona doesn't. I am leaving behind some really good people who I wish I could continue teaching. Alas, it is not to be.
It's very hard to stay positive, but I try. I have so many large, red, painful lesions, it's like a starfield all over my body. I'm moving away from daytona and I'm worried that I'll never quite recover. Finishing school, finding work... Right now it seems so far away. My only priority is health.
My world is literally turned upside down. I wish that this disease has never come to me. I hope that I can make the best of what is left of my world.
I hope this infusion here gives me... Something. At the very least, a little bit of dignity as I leave this life behind me.