Hello everyone!
I can't quite remember if I ever posted here before, but I do lurk quite often and read all the posts. Instead of venting or talking about a bad day, I have come with good news! My mother's first book, I Have CFS But I Don't Look Sick has just come out!
There are a lot of CFS books out there that talk about diets, medicine regimens, exercises to give you more energy, herbal supplements, ect., but this book is the first of its kind that we know of. It discusses, in depth, what a CFS sufferer goes through on a daily basis without holding anything back. It's a short read, under 100 pages, but that doesn't mean it's short on insight or emotion. My mother wanted it to be short enough for a CFS reader to read comfortably without straining, but detailed enough where she could tell her story and it could be enjoyed by normal, everyday people.
My mother is entering her 24th year of suffering with CFS. She is 44 years old, has raised two children, dealt with a husband that sided with the doctors and assumed it was "all in her head", and sorrowfully witnessed her two children develop CFS as teenagers. I am one of those children, and much to both me and my mother's horror, in October of 2009 I also developed Fibromyalgia. So not only does this book talk about her life, but it also talks about mine. From the time I dropped out of the marching band due to symptoms in highschool, to cutting back on days at work, until I finally had to medically withdraw from the college of my dreams to become completely disabled and homebound. I just turned 23 years old last month, and my brother is 19.
Without giving too much away, there is a short synopsis on all the things the book talks about. If you're interested in purchasing it, you can
find it here on Amazon. If you have any questions, please feel free to post them here!