Introduction and Rant (as per usual!)

Apr 18, 2010 15:38

Be warned: This will probably be long, so skim read if necessary.

I've never had the opportunity to be part of a fibromyalgia group of any type before, so this is a very new experience. I'm both extremely excited to be a part of one, and a little unsure of where to begin.

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fibro fog, chronic fatigue syndrome, rant, introduction, family, daily life, emotional support

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awolfcalledskya April 18 2010, 23:08:06 UTC
Yeah, my parents were similar with the onset, especially my father. But on my worse days, they soon discovered no amount of emotional distress they could inflict on me had any effect on getting me out of bed and to school. Eventually, after all the yelling and screaming matches, they came to accept the fact that I wasn't just playing hooky, and that it was real and it was severe. They've been amazing ever since.

And very true, that; I had an overachieving type of friend, during the time I was still in high school. Her older sister competed in the olympics in Biathalon, and her parents expected her to continue biath and live up to her sister, etc etc. She was very athletic, always on the go, and just didn't know her own limits. Very much unlike me.
She brought up a very sore spot for me, at one point.
She said, "You know, maybe they are right, Rachel. Maybe it is in your head, and maybe if you change your outlook on it, it'll improve."
She didn't say it or mean it in a negative way; it was very gently said. But it was still the wrong thing to say and I said as much. I then went into a discussion with her about it. But I know, even though she never brought up again, that she still believed that there was at least a grain of truth in what the doctors had said, and while she wanted to believe me, she couldn't. We still talk, rarely. But we've grown distant. She's in college and, as usual, making herself go extinct from everyone but her boyfriend. And, as usual, I am still stuck in grade 11, trying to graduate from high school.

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shesfearless April 18 2010, 23:13:26 UTC
Good luck getting through school. My first two years of college (and high school) were hell and not at all reflective of my usual work. However, I've gotten down a lifestyle that makes school possible as well as utilizing disability services so that crazy professors don't understand my limitations. :P

My husband ended up getting his GED because school, even the virtual kind, proved to be too much for him. He's currently applying for disability.

I'm glad your parents have come around so that they can support you more.

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awolfcalledskya April 18 2010, 23:31:26 UTC
Same here.

And yeah; that's about how it sums up how I feel, about school. Good luck. But I'm hoping I can push through it, scrape some passes, and move on. Otherwise, I'll probably do the exact opposite and focus on my music and developing a steady niche in it, somewhere. I know I have the talent to at least become a stable, local artist and support myself. But school just would open up so many more doors for me.

I wish you the best! It would be a great accomplishment for you to finish and be able to continue on where so many others just can't. It's too bad that your husband couldn't, but perhaps things will look up for him someday down the road. There's nothing we can all do but keep trying, despite it all.

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