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Sep 01, 2009 16:20

I hurt, period.  And my husband keeps getting mad at me because I forget things.  He still thinks fibro is a "phantom disease" and that fibro fog is an excuse I use to explain why I am not paying enough attention to certain things.  And I do seem to get "lost in the fog".  But I don't want to.  I sit in group (I'm in an intensive day program to ( Read more... )

fibro fog

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marsidotes September 3 2009, 03:36:52 UTC
It looks like you got bombarded and I am so sorry. Most of us want only to help you. This fibromyalgia is a serious thing and difficult at best to live with. I'm sorry if I contributed to the burden.

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babarian_kat September 3 2009, 05:52:03 UTC
It's okay. I was at a poetry reading tonight and my fibro was very activated. It seems not to like extremes in temperature. I guess that's normal, because there was another woman there with fibro, and she related. She and her husband took me back to my place afterward. Her husband is so much nicer. He opened the van door when I said I was in too much pain to deal with heavy, closed it for me, and opened it again when I got out.
Actually, I'm sure Mark would have done the same thing if it was another woman we were driving and not me. They're different in public, aren't they? Anyway, Mark made me quesadillas when I got back. I told him I was in way too much pain to do dishes, that I would work on them tomorrow after group. He accepted that. I also told both our housemate and him that I wasn't taking any more trash out, I got hurt too badly last time. Neither of them objected, so at least I don't have to do that again.

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bettrwrittendwn September 3 2009, 14:43:51 UTC
I second this. I didn't mean to be blunt when you are already facing a lot of problems. But just so you know, we are all trying to support you, not push you into something you don't want. Again, I wasn't trying to insist you leave your husband- as previously mentioned by another poster, I don't know the intricacies of your marriage and can't tell you how to manage it. If its not what you want, and you're not ready, thats perfectly fine. I'm not going to look down on you for that, you have my full support. I'm sorry that I was judgemental of your situation, I don't know enough about it ( ... )

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babarian_kat September 3 2009, 15:18:06 UTC
I was taking the lead a lot at the beginning. A couple of the women seemed to think I was monopolizing the group, so I started being quieter. I'm not real good at finding the middle ground yet. It's either too much or not enough.

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bettrwrittendwn September 3 2009, 15:22:58 UTC
It always takes a long time finding a comfortable interaction. You'll get the hang of it soon :)

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