Words and numbers make my head hurt!

[fealubryne]

Ugh. Things have been... rough. Mother's Day was fun, but it wiped me. I have been utterly, utterly wiped. Like, to the point of being unable to even convince myself to get off my fat ass and move across the room. So tired

Comments

[fealubryne]

It's not that they're not informed - they know warning signs to look out for, they know what to do in an emergency, and they know that we're going to have to take precautions. Thing is, they don't frequent the forums and help circles. I don't think they need to hear the cautionary and horror tales that people tell, I don't think they need to be scared. It's one thing to be aware and prepared, which they are. But so far I'm trying to play up the positives: 100% cure rate for Cushing's, two medications for life as opposed to, like, six, people can live relatively normal lives. That sort of thing. They know it's nothing to mess around with, and it's better to err on the side of caution if they even suspect something's wrong.

At the same time, I've also done enough reading to realize just how quickly and how badly things can go wrong. The thing is, if it does, there's only so much that can be done in the first place - so why worry them more? My mom's not in the dark, but same with anything in the medical field, it's impossible to know the details of everything all the time unless you make it a specific priority. Because I've done the research I honestly know more about this than she does. And even with what she knows she's afraid of leaving me home alone and all that. If she and Alex saw some of the tales I've seen I think they would be terrified. They don't need to be scared, just informed. So I don't really think they need to know everything I'm finding out, if that makes sense.