on needing to just do it...
0) I want ancestry.com to start promoting http://join.marrow.org/gosusan to its users.
1) I then want people from ancestry.com who join the registry to opt-in to sharing their family tree data with marrow.org.
Why? Because marrow types are hereditary. If I am looking for a specific type, and if I am "close" with someone's type, I can ask them to ask their relatives to consider joining. Even if directly asking is not possible, this can give information about population genetics and marrow types. Today the state of the art is small scale studies, sometimes under 100 people.
For 0) I can buy ads on ancestry.com but ideally I could show it to people who are already buying genetic tests from ancestry.com . To pull that off or pull off 1) I need to contact ancestry.com . LinkedIn shows I'm a 3rd degree contact with someone there who does business development, but I'm too chicken to pick up the phone and call him so far. Need to just do it.
Thankfully, the good news is my sister has a "9 out of 10" donor undergoing workup now. It looks like she will get a marrow transplant. She could still use a "10 out of 10" donor, but this is so much better than nothing.
That being said, there are plenty of other people who have no match. There's a lot to do here.
What other sites besides ancestry.com should I go after?
1) I then want people from ancestry.com who join the registry to opt-in to sharing their family tree data with marrow.org.
Why? Because marrow types are hereditary. If I am looking for a specific type, and if I am "close" with someone's type, I can ask them to ask their relatives to consider joining. Even if directly asking is not possible, this can give information about population genetics and marrow types. Today the state of the art is small scale studies, sometimes under 100 people.
For 0) I can buy ads on ancestry.com but ideally I could show it to people who are already buying genetic tests from ancestry.com . To pull that off or pull off 1) I need to contact ancestry.com . LinkedIn shows I'm a 3rd degree contact with someone there who does business development, but I'm too chicken to pick up the phone and call him so far. Need to just do it.
Thankfully, the good news is my sister has a "9 out of 10" donor undergoing workup now. It looks like she will get a marrow transplant. She could still use a "10 out of 10" donor, but this is so much better than nothing.
That being said, there are plenty of other people who have no match. There's a lot to do here.
What other sites besides ancestry.com should I go after?