Invisible Illness...think about it.
This post is for Invisible Illness Week. More Information can be found at the end.
1. The illness I live with is:
Polycystic Ovary Syndrome, Spina bifida occulta, scoliosis.
2. I was diagnosed with it in the year:
2007, 1987
3. But I had symptoms since:
I can remember. They just didn't figure out that there was really something wrong until I was older. I wish the doctor had listened earlier when things might have been able to be fixed somewhat.
4. The biggest adjustment I’ve had to make is:
Does it count as an adjustment if you've always lived this way?
5. Most people assume:
There's nothing wrong with me.
6. The hardest part about mornings are:
They come too danged early.
7. My favourite medical TV show is:
Emergency! (I love the classics!)
8. A gadget I couldn’t live without is:
The laptop is more than a mere gadget, so my cell phone, I guess.
9. The hardest part about nights are:
Spending them alone.
10. Each day I take __ pills & vitamins.
Right now, I have one daily pill, and am finishing a regimen of penicillin.
11. Regarding alternative treatments I:
Am a big fan of them.
12. If I had to choose between an invisible illness or visible I would choose:
None of the above?
13. Regarding working and career:
I do it. I'm not in that bad of shape, really. Doing full time work and full time school.
14. People would be surprised to know:
Some of the stuff that goes through my mind.
15. The hardest thing to accept about my new reality has been:
That I may have limits after all.
16. Something I never thought I could do with my illness that I did was:
Can't think of anything. Ask me again after I've gotten my Paramedic license.
17. The commercials about my illness:
Don't exist.
18. Something I really miss doing since I was diagnosed is:
Nothing. I never was able to do it, so don't have it to miss.
19. It was really hard to have to give up:
Can't think of anything I gave up. Never had planned to have kids anyway.
20. A new hobby I have taken up since my diagnosis is:
Irish stepdancing. Seriously, I did.
21. If I could have one day of feeling normal again I would:
Grab a certain fellow (or 2, or..) of my acquaintance and not let them out of the bed till we were all quite worn out! LOL
22. My illness has taught me:
I am stronger than I have any right to expect.
23. Want to know a secret? One thing people say that gets under my skin is:
But, don't you want kids some day? How devastating! Maybe someday you'll be able to....
24. But I love it when people:
Accept me for who I am, flaws and all.
25. My favorite motto, scripture, quote that gets me through tough times is:
There's nothing an Engle can't do! (My grandpa always told my mom that, and she passed it on.)
26. When someone is diagnosed I’d like to tell them:
Yeah, it stinks, but sometimes validation is enough to make the struggle worth it.
27. Something that has surprised me about living with an illness is:
How many other people I know who live with invisible illnesses/defects.
28. The nicest thing someone did for me when I wasn’t feeling well was:
Recently? Made goofy faces at me and made me smile so I could get through the work day.
29. I’m involved with Invisible Illness Week because:
One should never judge a book by its cover.
30. The fact that you read this list makes me feel:
Honored.
Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at http://www.invisibleillness.com If you are interested in blogging a post like this one please go to: http://ow.ly/nhg
1. The illness I live with is:
Polycystic Ovary Syndrome, Spina bifida occulta, scoliosis.
2. I was diagnosed with it in the year:
2007, 1987
3. But I had symptoms since:
I can remember. They just didn't figure out that there was really something wrong until I was older. I wish the doctor had listened earlier when things might have been able to be fixed somewhat.
4. The biggest adjustment I’ve had to make is:
Does it count as an adjustment if you've always lived this way?
5. Most people assume:
There's nothing wrong with me.
6. The hardest part about mornings are:
They come too danged early.
7. My favourite medical TV show is:
Emergency! (I love the classics!)
8. A gadget I couldn’t live without is:
The laptop is more than a mere gadget, so my cell phone, I guess.
9. The hardest part about nights are:
Spending them alone.
10. Each day I take __ pills & vitamins.
Right now, I have one daily pill, and am finishing a regimen of penicillin.
11. Regarding alternative treatments I:
Am a big fan of them.
12. If I had to choose between an invisible illness or visible I would choose:
None of the above?
13. Regarding working and career:
I do it. I'm not in that bad of shape, really. Doing full time work and full time school.
14. People would be surprised to know:
Some of the stuff that goes through my mind.
15. The hardest thing to accept about my new reality has been:
That I may have limits after all.
16. Something I never thought I could do with my illness that I did was:
Can't think of anything. Ask me again after I've gotten my Paramedic license.
17. The commercials about my illness:
Don't exist.
18. Something I really miss doing since I was diagnosed is:
Nothing. I never was able to do it, so don't have it to miss.
19. It was really hard to have to give up:
Can't think of anything I gave up. Never had planned to have kids anyway.
20. A new hobby I have taken up since my diagnosis is:
Irish stepdancing. Seriously, I did.
21. If I could have one day of feeling normal again I would:
Grab a certain fellow (or 2, or..) of my acquaintance and not let them out of the bed till we were all quite worn out! LOL
22. My illness has taught me:
I am stronger than I have any right to expect.
23. Want to know a secret? One thing people say that gets under my skin is:
But, don't you want kids some day? How devastating! Maybe someday you'll be able to....
24. But I love it when people:
Accept me for who I am, flaws and all.
25. My favorite motto, scripture, quote that gets me through tough times is:
There's nothing an Engle can't do! (My grandpa always told my mom that, and she passed it on.)
26. When someone is diagnosed I’d like to tell them:
Yeah, it stinks, but sometimes validation is enough to make the struggle worth it.
27. Something that has surprised me about living with an illness is:
How many other people I know who live with invisible illnesses/defects.
28. The nicest thing someone did for me when I wasn’t feeling well was:
Recently? Made goofy faces at me and made me smile so I could get through the work day.
29. I’m involved with Invisible Illness Week because:
One should never judge a book by its cover.
30. The fact that you read this list makes me feel:
Honored.
Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at http://www.invisibleillness.com If you are interested in blogging a post like this one please go to: http://ow.ly/nhg