New to this
Hey! I'm new to this. I was diagnosed with Ehlers Danlos in 2009 after having severe joint pain, frequent dislocations, torn shoulder muscles with no injury, upon other things. Soon after being diagnosed, I had to quit dance. I was a junior in highschool. I was told I have hypermobility and my geneticist believes I have strains of vascular which is extremeley rare for types to cross over. I am the first in my family to have it. I was tried on almost every medication (besides narcotics) to control pain. None worked. I passed out in the shower from one and got three ulcers from another. My rheumatologist told me I am one of the worst pain cases she has seen from Ehlers Danlos.Currently I am 20. Im married and I had a baby. My pregnancy was terrible. I was high risk. I was hospitilized with kidney stones. Besides that everyday was a challenge. I could barely get out of bed. I was in so much pain during my pregnancy. I had to have a c section and recovery was long. I have a nasty scar to prove it. Now I'm still battling daily chronic pain. My knees and back are the worst areas. I can barely get up and down from the floor to play with my son and I'm just twenty! I was just in the emergency room for chronic chest pain. Its been a long journey so far and it's going to continue to be an uphill battle!