:)
Hi my name Is Hollie-Rose, I havent been diagnosed with this disorder but since i was about 3, im 21 now, i have been overly flexable, i have no arch support in my feet at all and my knee caps dislocate to the point where i am now on disability, my hips have started to feel like they are slipping out and i can always feel my ligaments grinding over my feet and flopping around my knee caps.
Only recently my doctor told me my ligaments cant hold collagen, he did no tests he googled it. Hypermobile flexability, elongated ligaments and hyper extensive joints. When my knee caps come out they pop right back in but its very painfull and once i caught it before it slipped around the back of my leg. They swell up after they dislocate, I went surfing today and my knee is very swollen from laying flat on the board.
I have started doing my own research seems no one can help me and the hospital where i live has turned me away ( i have been seeing the orthotics department since i was very young) it seems they have given up on me so im on my own mission now.
I read the other day hypermobility syndrome can be linked to ovarian problems and sorts of things like that? Since i was young i have been to hospital for un explained stomach problems, they thought my appendix was going to explode but turns out it wasnt it at all and they didnt know what it was. When i streatch i still get those pains, it feels like tearing, do these things sound familliar to anyone?
Does anyone know what Im talking about? Can anyone help me?
Thanks :)
Only recently my doctor told me my ligaments cant hold collagen, he did no tests he googled it. Hypermobile flexability, elongated ligaments and hyper extensive joints. When my knee caps come out they pop right back in but its very painfull and once i caught it before it slipped around the back of my leg. They swell up after they dislocate, I went surfing today and my knee is very swollen from laying flat on the board.
I have started doing my own research seems no one can help me and the hospital where i live has turned me away ( i have been seeing the orthotics department since i was very young) it seems they have given up on me so im on my own mission now.
I read the other day hypermobility syndrome can be linked to ovarian problems and sorts of things like that? Since i was young i have been to hospital for un explained stomach problems, they thought my appendix was going to explode but turns out it wasnt it at all and they didnt know what it was. When i streatch i still get those pains, it feels like tearing, do these things sound familliar to anyone?
Does anyone know what Im talking about? Can anyone help me?
Thanks :)