My Eyes and Glaucoma on the Horizon

Mar 29, 2016 15:56

So my eyes are acting up: had to go to an emergency appointment on Friday and close the bookstore, as they were burning so badly and so light sensitive I could barely open them. They'd been slowly getting worse for weeks.

Doctor put in collagen plugs in the tear ducts to see if they could keep some tear film in the eyes, as my Sjogren's means I never have enough, but apparently it's flaring so badly (or progressing) I don't have much film at all. So far I can't feel the plugs (which is good -- it was creepy having them put in!), but my eyes are still dry and under the lights in the bookstore, plus being on the computer, it means they burn by the end of the day.

We're going to see how the plugs do, and if my eyes don't overflow, that means I may be right for them (::squidge::) closing the ducts permanently with a laser. Anyone doing anything to my eyes squidges me out: I can barely handle regular exams. This idea really freaks me.

So I'm on less computer time than usual :( and time in the dark when I can. I put in drops constantly to hydrate them, and I have special drops twice a day, which I've been on for years. And I see him again in a month.

In the meantime, he was going over my charts and asked me how my GLAUCOMA was doing. WUT???!!! No one ever told me I had glaucoma. I'm not on meds for it, no one told me, nothing. It's apparently been on the charts for several years. And my pressure is up. So what the hell is going on?! He wouldn't answer. Told me I was at an "emergency appointment" and the glaucoma was something I had to ask my regular eye doctor about. He just shrugged it off and refused, REFUSED to discuss it. Talked right over me.

OMG. Glaucoma? You're got to be shitting me. Luckily I see the regular eye doctor in 2 weeks to have new glasses done (which I desperately need). I'm going to be screaming at her and reading her the riot act. And if she tries to pass me off to yet another doctor and not discuss the glaucoma diagnosis, I'm going to start throwing things. I swear to god. That office will be trashed. No one can diagnose me with a disease like that and not discuss it with me and not treat it, for god's sake. I can't believe this. I could start going blind and no one would take responsibility for treating or talking about it.

sjogren's, health

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