Huh. Who'd 'a thunk?
Got a call from my publisher of The First Year: Lupus a bit ago, and turns out Inside Edition is looking for someone who is an "expert" in lupus who has the disease to do an interview for them today about Michael Jackson.
All my info and photos of my gorgeous malar rash (the facial butterfly rash I get when I flare) has been pushed on up to the contact's senior producer. I should hear soon if I need to go into the local studios for a satellite hookup interview.
Inside Edition lady: Can you drive to Boston?
Me: We have TV studios here in Manchester, NH.
Her: We need a satellite hookup.
Me: ::rolls eyes:: We have them here in Manchester, seven minutes from my house.
(What I wanted to say: "DOH! Ever heard of the US presidential primary? New Hampshire? Every four years? The campaign? Ring a bell? Of course we have satellite hookup! We have some of the best!" Hah! Oh, how I love people in the business...)
I'll see how this pans out. If it does show, they're clearly in a hurry to package it for tonight's episode.
You know, I never thought I'd actually be grateful to Michael Jackson for anything at all. I sort of ignored all the stuff about his death until the idea he had lupus came up, and look what's happening now. Huh. Who'd 'a thunk?
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And I didn't get enough sleep last night; I'm running on fumes. Oh, and of all times for me not to have a lupus flare going on? It's now. Hah! I've been trying so hard to fend off a flare by de-stressing myself! Too funny. They sooo want to concentrate on the skin discolorations that can happen with discoid lupus, and I kept trying to tell the woman, "Yeah, that's probably what he had to start off. But that doesn't kill you. What killed him was SLE, systemic lupus -- that's what would have inflamed the arteries, leading to a heart attack."
(I'll also bet this is what was behind his "mysterious" tendonitis. Been there, done that, myself. Typical lupus patient: no one bloody believed him and checked for lupus. Or, he was one of the 40+% of patients that have all the symptoms and don't test positive for the rheumatoid factor, ANA. I'm one of those, too. I only hope this will raise more awareness of the disease and get some money into research. It's needed so much.)
All my info and photos of my gorgeous malar rash (the facial butterfly rash I get when I flare) has been pushed on up to the contact's senior producer. I should hear soon if I need to go into the local studios for a satellite hookup interview.
Inside Edition lady: Can you drive to Boston?
Me: We have TV studios here in Manchester, NH.
Her: We need a satellite hookup.
Me: ::rolls eyes:: We have them here in Manchester, seven minutes from my house.
(What I wanted to say: "DOH! Ever heard of the US presidential primary? New Hampshire? Every four years? The campaign? Ring a bell? Of course we have satellite hookup! We have some of the best!" Hah! Oh, how I love people in the business...)
I'll see how this pans out. If it does show, they're clearly in a hurry to package it for tonight's episode.
You know, I never thought I'd actually be grateful to Michael Jackson for anything at all. I sort of ignored all the stuff about his death until the idea he had lupus came up, and look what's happening now. Huh. Who'd 'a thunk?
============
And I didn't get enough sleep last night; I'm running on fumes. Oh, and of all times for me not to have a lupus flare going on? It's now. Hah! I've been trying so hard to fend off a flare by de-stressing myself! Too funny. They sooo want to concentrate on the skin discolorations that can happen with discoid lupus, and I kept trying to tell the woman, "Yeah, that's probably what he had to start off. But that doesn't kill you. What killed him was SLE, systemic lupus -- that's what would have inflamed the arteries, leading to a heart attack."
(I'll also bet this is what was behind his "mysterious" tendonitis. Been there, done that, myself. Typical lupus patient: no one bloody believed him and checked for lupus. Or, he was one of the 40+% of patients that have all the symptoms and don't test positive for the rheumatoid factor, ANA. I'm one of those, too. I only hope this will raise more awareness of the disease and get some money into research. It's needed so much.)