So Much, yet so little

[dusktintedkiss]

Well, I found out more, and less, then I wanted to from the MRIs. I found out a little more clarification about HOW my nf affects me, such as the pockets of nerves in my pelvis, where they go down into the lower half of my body, are really really swollen. I learned that most of the mass is probably due to Lymphodema, which is caused because the capillaries cannot carry the watery bits from my veins back up to the heart very well, thus causing the swelling. I didn't find out when, or even really IF, we are going to be able to do anything. The doc sent me for another CT scan, just to be sure that I didn't actually fracture my pelvis in 3 places, not just 2. Thankfully we got to do that the same day, and while i had to drink a huge cup of contrast, it tasted like vanilla, not chalk. This is always a bonus. It was kind of funny, we went to the same imaging place as last week, and the aide that put in my IV was there again, and he called me back to put in the one for this time and he was like "I knew that was your name! What are you doing back?" I guess a reddish/brunette on crutches is easy to remember *snerk*

We go back and learn about the scan on Monday, and hopefully find out some things like support groups or clinics for adults (most of the ones in the country it seems focus on children, but kind of drop you when you turn 18, go figure). This doc seems really willing and anxious to help. We may also be able to take some more steps now that the infection I've had for far too long is almost 100% cleared up.

Guess that's all for now, just wanted to let you guys know what we had found out. Hope everyone has a fab Friday!