Coming to terms with genetics and what we can do to help

Aug 03, 2012 02:39

Lately there has been a lot of speculation on new internet memes depicting horrific scenes in snapshots of as=is reality; children who age prematurely at outstanding rates and also children who are unable to even to grace a windowsill at the fear of getting a sun burn.

Yes - some children have Progeria - a disease that ages them significantly. I have seen these children in memes all over the internet and on facebook. They are people with genetic shortfalls and in exchange for living - they are given an experience in life unique and brief to what many of us attribute as the one life we have. They fare no better than another group of children with a genetic disorder that makes their skin extremely photosensitive to the point of developing skin cancer at a young age. These children have genes that give them xeroderma pigmentosum oe XP for short.

While the circumstances for these memes around these tragic genetic diseases are questionable - it begs the real question of what I could do to help improve someone else's life. What could I do? What should I do to help? Is it my place to help? And other questions float through my mind.

But what is definite - is though America's Universal Healthcare is dubbed as too costly (which by many rights I completely agree with) - it also follows that people should not be punished for the way that are born (but that they are) and as fellow human beings - what would make us more human would be the way we treat these people. Perhaps by supporting the Healthcare Act then - I can help support other people with these diseases - and offer some hope for them.
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