Just cure me already
I know I haven't written any blogs or notes for a while. A lot has happened, the good and the bad. Such is life, bittersweet.
Lately I've been googling "Latest stem cell research" daily to read up where they stand...and it's all good news about them curing people with Parkinson's (Some guy in Germany, he still had 2 mild symptoms, but hey thats way better than where he was previously) or ALS. It's all great news which is updated almost daily. They seem to be working on the immediate killer disease first like ALS. I understand that's maybe best, but it kinda sucks for me because my muscular dystrophy, CMT type 3 is rather rare so am I pushed back on the waiting list?
But I am becoming so impatient because science takes time and I'm worried about how much time I have left. Things have been rather hard lately being in the hospital last December and all. I've been fearing for my life which only makes things worse because its proven that stress is damaging to overall health.
I'm getting so anxious to the point where I want to be one of test subjects in a stem cell trial. I want to get better before it gets any worse. I don't want to live on a respirator machine, I'd rather use my own lungs. That bi-pap machine was scary and uncomfortable...never again please.
So far the only negative effects I've heard of are tumors. Which can kill, yes, but they'd be monitoring me with following check ups and tumors can be removed. I'd rather have a tumor than what I have now.
I suppose all I can do is wait and live life to the fullest until my turn comes up. After all, I have an amazing girlfriend and excellent friends to keep my spirit up.
Give me peace of mind.
Lately I've been googling "Latest stem cell research" daily to read up where they stand...and it's all good news about them curing people with Parkinson's (Some guy in Germany, he still had 2 mild symptoms, but hey thats way better than where he was previously) or ALS. It's all great news which is updated almost daily. They seem to be working on the immediate killer disease first like ALS. I understand that's maybe best, but it kinda sucks for me because my muscular dystrophy, CMT type 3 is rather rare so am I pushed back on the waiting list?
But I am becoming so impatient because science takes time and I'm worried about how much time I have left. Things have been rather hard lately being in the hospital last December and all. I've been fearing for my life which only makes things worse because its proven that stress is damaging to overall health.
I'm getting so anxious to the point where I want to be one of test subjects in a stem cell trial. I want to get better before it gets any worse. I don't want to live on a respirator machine, I'd rather use my own lungs. That bi-pap machine was scary and uncomfortable...never again please.
So far the only negative effects I've heard of are tumors. Which can kill, yes, but they'd be monitoring me with following check ups and tumors can be removed. I'd rather have a tumor than what I have now.
I suppose all I can do is wait and live life to the fullest until my turn comes up. After all, I have an amazing girlfriend and excellent friends to keep my spirit up.
Give me peace of mind.