(no subject)
First of all, thank you to everyone for your support yesterday. I went back and read my entry from yesterday... wow. I was pretty out of it! (That post literally did not make sense!)
I was on 800mg a day of Tegretol, but it had stopped working. The seizures were increasing, and my memory was going to shit. I saw the specialist, who wanted to put me on Lamictal. I was cool with that, but had warned her that another neuro had tried to get me approved for it, and was denied by the state.
She said no problem, and to just call her when I got to week 4.
I did.. and by week 5 had heard nothing. I was literally down to 2 doses and called again. I heard back from the doctor, who agreed that the side effects from the Lamictal were not worth the seizure control (REALLY shakey hands, insomnia, lack of appetite.nausea) and therefore wanted to decrease that as well as finish off the Tegretol, and perhaps try me on a new med called Vimpat.
Long story short, the insurance did not approve either the Lamictal or the Vimpat, and I suddenly found myself going from 800mg of just Tegretol daily, to 400mgs and 200mgs of Lamictal.
Now I am on nothing but 400 of Tegretol- and yesterday the seizures were BAD. I went ahead and increased my dose by 200mgs- but that isn't going to help much.
*sigh * I understand the whole trial/error thing, but my question is why didn't she pay more attention when I told her the prescrition wouldn't be approved? I know I'm not a professional, but that doesn't mean I don't know what's going on!
Anyhow, I feel the aura today, but have had no seizures yet. *knocks wood* I was able to finally get my seizure on film yesterday. It was really weird to see. I'm going to send it off to the neuro in Phoenix and see what's up.
In good news- Ethan is going to come live with me for 4th grade! I'm so excited! Now all I can do is hope beyond all hope that they approve me for disability. I'll be all set and happy then!