(no subject)
I've been keeping busy in spite of my body's lack of compliance with what my brain thinks we should do. I often feel like my brain and my body are two separate entities. They certainly aren't working together. I fell again last night. Not bad really...my legs just wouldn't work at all and when I tried to get into bed I slipped off, so it was a soft fall. Grady and Chad couldn't get me up so they had to get the patient lift to put me in bed. I woke up this morning and I can stand on my legs. I just never know when they will work and when they won't.
I am almost done with my next issue of Creative Choices zine...7 pages to go. After 3 issues, I was bored so I changed from booklet size to full page size. I like it a lot better--more room to play!
I started doodling on 8 1/2 by 11 pages and cutting them up into postcards and ATCs. Not related to anything I needed to do--just felt like goofing off for a change.
Jennifer, Chad, and Rain spent the night the last two nights, so Rain has been a distraction from my usual routine. She thinks I am her playmate instead of her grandmother and gets upset when I am not constantly playing with her. We watch movies, draw, and play legos together.
I did quit physical therapy. Sid is going to keep coming over and I am going to look at other places to go. I just don't think the PTs know enough about muscle diseases and expected me to perform like people who don't have autoimmune diseases. Mostly their attitudes were making me feel horrible about myself and I don't need that negativity in my life.
I am almost done with my next issue of Creative Choices zine...7 pages to go. After 3 issues, I was bored so I changed from booklet size to full page size. I like it a lot better--more room to play!
I started doodling on 8 1/2 by 11 pages and cutting them up into postcards and ATCs. Not related to anything I needed to do--just felt like goofing off for a change.
Jennifer, Chad, and Rain spent the night the last two nights, so Rain has been a distraction from my usual routine. She thinks I am her playmate instead of her grandmother and gets upset when I am not constantly playing with her. We watch movies, draw, and play legos together.
I did quit physical therapy. Sid is going to keep coming over and I am going to look at other places to go. I just don't think the PTs know enough about muscle diseases and expected me to perform like people who don't have autoimmune diseases. Mostly their attitudes were making me feel horrible about myself and I don't need that negativity in my life.