Hummingbirds and maca.

[awils1]

Questions for the lovely and supporting people here:

1. Has anybody tried the herb maca? It’s quite expensive here in Australia, but if people with fibromyalgia and CFS (or one or the other) have had good experiences with it, I’m willing to shell out.
2. Also, I’d love to read some opinions on A Hummingbird’s Guide-merely the ramblings of conspiracy

Comments

[dzilinebisa]

It is true that the CFS-toting psychologists like Simon Wessely etc are in the pay of various insurance companies though, which makes me less likely to trust their motives. :(

In answer to your question, I do get fatigued, but I wouldn't say it's my worst symptom by a long chalk. I would put pain and cognitive symptoms before fatigue. But yeah, I've never heard of anyone with ME who didn't get any fatigue *at all*.

[awils1]

I tend to agree with you. I usually say my main symptom is exhaustion---there's nothing left. The fuel tank is empty, and mostly, it stays empty.

Those tests are very similar to what I experience; it feels like there is not enough oxygen in my blood. Sometimes I'm tempted to go on my grandfather's oxygen for 15 minutes or so. He suffers from low oxygen saturation levels due to lung damage and it helps him, of course.

[anonymous]

I read the same thing

"The amount of impairment the Lab see’s can be astonishing - some patients suffer as much as a 50% drop in their ability to produce energy the next day. Ms. Stevens spoke of a twenty-something man whose next day exercise tests were worse that those of a normal 85 year old. In a hospital setting his cardiopulmonary exercise profile would suggest he had heart failure."

From here - http://aboutmecfs.org/News/PRJan09Pacific.aspx