(Untitled)

Oct 25, 2007 18:27

I don't know what to do. I was diagnosed with M.E. about 3 years ago but up untill June this year I was OK to work a part time job. I left my job of my own accord as it was making me really ill, and the doctor signed me off for 6 months with, get this, depression ( Read more... )

deteriorating, advice

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woolly_socks October 25 2007, 21:20:15 UTC
I'm so sorry, that just sounds just terrifying. I don't have much to say that will be helpful, I don't really understand how the health system works over there. I've heard it can be hard to change doctors? I just wanted to offer some support. I had to quit working six months ago, and I've just heard from my employer (they really wanted to keep my job open til I could come back) that they are going to terminate my employment and hire someone else. And like you, I saw a specialist when I first stopped work who diagnosed depression. It absolutely SUCKS being misunderstood, and having your future so uncertain is just so frickin scary.

Hang in there, and keep trying to find a doctor who gets it, or is at least open minded enough to learn. There are doctors out there who understand.

Going the depression way might work, as dandelion suggested, but the trouble with this is that a misdiagnosis might come back to bite you later. Mine meant I had to go and see psychiatrists and basically prove that I am NOT depressed. Which while I am not clinically ( ... )

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normaeinstein October 25 2007, 23:15:07 UTC
Gosh, this makes me so angry! I wish I could give these doctors and government members who make decision about who gets payments this illness for a day. It just makes me fume. My CFS specialist actually said to me that it would be easier for me to keep working because there was no guarantee I would get a benefit...and part time work is absolutely killing me. I'm going to have to quit shortly with no benefits because I'm getting worse by the day. I know how you feel, good luck!

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woolly_socks October 25 2007, 23:18:29 UTC
Was this reply meant for my comment or for maryhowardfairy's post?

I know what you mean though, it makes me really angry sometimes too. But anger makes me tired so I try to just do it occasionally...

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maryhowardfairy October 26 2007, 11:07:24 UTC
The other problem is of course, when signed off with depression, it doesn't make me eligable to things like a blue badge for disabled parking or that sort of thing, which sucks, as I can hardly walk from the car park into the town centre at the moment.

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woolly_socks October 26 2007, 23:20:56 UTC
Hmmm yeah, another reason a misdaignosis is not gong to be helpful.

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