I don't know what to do. I was diagnosed with M.E. about 3 years ago but up untill June this year I was OK to work a part time job. I left my job of my own accord as it was making me really ill, and the doctor signed me off for 6 months with, get this, depression
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Hang in there, and keep trying to find a doctor who gets it, or is at least open minded enough to learn. There are doctors out there who understand.
Going the depression way might work, as dandelion suggested, but the trouble with this is that a misdiagnosis might come back to bite you later. Mine meant I had to go and see psychiatrists and basically prove that I am NOT depressed. Which while I am not clinically ( ... )
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I know what you mean though, it makes me really angry sometimes too. But anger makes me tired so I try to just do it occasionally...
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