Flist and community clean up

[catku]

Just made couple of minor changes  if you haven't posted in close to year +
or we don't interact except through a friend of a friend or belong to a
community that is dust I removed you.
 If you want back on you're probably crazy because my posts are few an far between.
But just comment and I'll put you back.

Now is the time to unfriend-- amnesty and

Comments

[catku]

Unfortunately my answer to how did they know it was multi focal adenoma was after the hysterectomy. The pathology report.

They found what they thought was a strange fibroid and sent me for imaging (utlrasound). The technician disagreed with the fibroid conclusion and thought it was adenomyosis. Turned out both were right. I had both...all over the place. But they only knew that after the surgery. I'm really glad I didn't wait and see, and try to conceive and suffer. And suffer I had been. The thing with adenomyosis is that it spreads in the wall easily and once the tissue is bruised and involved it won't function as it should and won't ever heal, unlike with endo which can be cured by menopause and or pregnancy on occasion.

I don't recall what the ultrasound tech said it was that convinced her, except the location and the depth into the wall of the uterus. I don't remember the description as being cyst in a sac though. That would have caused me pause too. A really good ultrasound tech at a WOMEN's facility should be able to tell what an adenoma looks like. If they don't see women's issues everyday they can't become experts on those issues.

It is very hard for them to tell the difference between adenoma and cancer since it's growing in the wall, BUT they should have been able to do a biopsy in the area they expected. They can do biopsies if they "want" to. But if you have other issues or a history of issues they may view this as the ultimate end to those and making sure you don't have a malignancy.

Have you ever had an exploratory laparacopy? They did one on me and said "all fine" but the front wall of my uterus had 70% coverage by multi focal adenomas less than 2 years later. I'm beginning to believe that they don't tell us when they see things that are normal or "benign" and they can't do anything about it.

I would get a second opinion before having the surgery unless :
1) you already have and don't want more kids
2) you've got time and money to recover.

It truly changed my life for the better. That said, it is the only way to confirm adenomyosis seen on imaging and is detection and cure in one surgery. Which may be why your surgeon wants to do that.

Did they give you an image? If not, ask for it and take it to another facility for examination.

I wish you luck and am willing to answer any other questions you have. Like I said I don't come here and post anymore so this probably the best way.