RSD big update

Sep 16, 2009 09:41

Erm hi *waves*

Well I know I don’t use my blog for much (I hope that’ll change soon though), and don’t know if anyone actually reads this, but I had to write this up.

As some of you will know I have a condition called Reflex Sympathetic Dystrophy (RSD) that has been increasingly debilitating for me over the last six years, leaving me ( Read more... )

rsd, remission, health, life

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doctorsdiva September 17 2009, 15:08:36 UTC
Sounds like you've been let down all over the shop. You and your parent(s) need to be really firm with Social Services don't be afraid to make a complaint, they have a statutory responsibility to you as a child and if there is a gap between them and the adult team they should fill it!! Talk to your CAB or I found this group on line http://www.disability-cambridgeshire.org.uk/ who might be a good first point of contact.

We need to get you support and help to get you out of bed and onto working on that list of aspirations.

I only live in Leicestershire - not that far from you so if I think of anything else or hear of anything I'll let you know. I was a social worker for 25 years working with kids with physical and learning disabilities so I know how crappy the system can be and the people who work within it too.

Oh and I think you need to get that cough looked at *raises eyebrows and starts to think of birthday smut but probably needs a prompt for something that you would like but am guessing Captain Jack*

*divahugs*

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captain91 September 17 2009, 17:15:26 UTC
thanks for all this hun, i appreciate it. i can only say i'm glad i'm not he the one filling in the endless forms - have you seen the size of a disibility allowance form?!

and according to my mother i'm good at complaining so we shouldn't have a problem there!

i think that cough might need a Doctor though! um, 9/rose medical care for one of them degenerates

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doctorsdiva September 17 2009, 17:25:23 UTC
I'll make a call to see if the Doctor is in ;)

Exactly when would you like this prescrpition to be filled - a months time was it???

*divahugs*

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captain91 September 17 2009, 17:40:01 UTC
the date on the back is october 21st

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