so
Hi, last year my 8 month old son, John, was diagnosed
with neuroblastoma. After 8 horrible months of chemo,
hospital stays and surgeries, he has been okay.
Last week, Friday, we went for his 6 month set of
scans. The bloodtest was normal and CT Scan was okay
in all the places he originally had it - leg, head,
lungs, and adreanal gland (where it started), but the
doctor found a little "line" on his liver...
Of course we fell apart. The doctor kept saying that
both her and the radiologist 'don't think it is
disease' or 'don't think its anything' - but I feel
like I can barely function. My wife, who has taken
this whole experience very hard, won't stop crying is
falling apart.
Tommorw (wednesday) we have another scan - MIBG -
which will highlight any cancer-cells. I just can't go
through that again. Seeing my wife and baby go through
this. My wife is seeing a therapist, who wants to see
her a couple of days this week to help her get through
this. I don't know. There is nothing I can do. I have
to keep working for insurance, and other obvious
reasons.
I don't know. I guess I just feel that the doctor
wouldn't tell us she doesn't think its anything if she
felt very strongly about it. She's been very
straightforward throughout this whole experience. Plus
she's a doctor and doctor's don't say things they
don't mean. I don't know.
thank you for taking the time to read this. I'd like
any advice/support I can.
with neuroblastoma. After 8 horrible months of chemo,
hospital stays and surgeries, he has been okay.
Last week, Friday, we went for his 6 month set of
scans. The bloodtest was normal and CT Scan was okay
in all the places he originally had it - leg, head,
lungs, and adreanal gland (where it started), but the
doctor found a little "line" on his liver...
Of course we fell apart. The doctor kept saying that
both her and the radiologist 'don't think it is
disease' or 'don't think its anything' - but I feel
like I can barely function. My wife, who has taken
this whole experience very hard, won't stop crying is
falling apart.
Tommorw (wednesday) we have another scan - MIBG -
which will highlight any cancer-cells. I just can't go
through that again. Seeing my wife and baby go through
this. My wife is seeing a therapist, who wants to see
her a couple of days this week to help her get through
this. I don't know. There is nothing I can do. I have
to keep working for insurance, and other obvious
reasons.
I don't know. I guess I just feel that the doctor
wouldn't tell us she doesn't think its anything if she
felt very strongly about it. She's been very
straightforward throughout this whole experience. Plus
she's a doctor and doctor's don't say things they
don't mean. I don't know.
thank you for taking the time to read this. I'd like
any advice/support I can.