Osteogenisis Improfecta...scary
my daughter was just diagnosed with this a couple days ago and she is now in 2 full arm casts she broke both her arms in a week and a half, she broke the first one dec 6 and she had surgery on that arm yeterday and then today she broke her other arm fallin off a chair less than a foot off the ground. now im startin to feel like my baby is just gonna crumble in my arms when i hug her, i dont understand this disease its unlike anything i have ever seen before in my life. my baby has pins and wires and rods in her arm and now she might have screws put in the new break im just so lost here, i feel so overwhelmed and im so tired physially and emotionally and financially cause i have to pay 100 every time i go to the hospital not to mention the scrips and the appts all the co-pays shit my insurence covers very little. its killin me and i have another gaughter who needs my attention and i cant find time to give it to her, and she doesnt understand why mommy and daddy keep leavin her and goin away with lily ya know, she is just a baby so to her we are just abandoning her. this whole thing is killin me. this "brittle bone disease" is the worst thing i have ever seen and i dont know what to do anymore. im so overwhelmed. workin full time, takin care of the kids, bein a good wife, gettin ready to start school in jan, and now this....why me?? all i wanted to do is make my life better, and it seems like there is always a huge speedbump in the road, im so close to just givin up...its exhausting. o well whatever theres nothin i can do about it so i guess ill just bitch about it and get over it...ugh