(no subject)
Sagittal synostosis, also known as sagittal craniosynostosis, is the result of the sagittal suture of on infant's skull hardening before the brain has had a chance to grow. The result is a skull that is elongated so that from the top, it appears oblong in shape. Sagittal synostosis is the most common of all synostosis. It affects between 45 and 55 percent of all children with the deformity. If children born with sagittal craniosynostosis do not have other closed sutures or medical conditions, the condition is typically not fatal.
Turns out i'm about to go through what any parent dreads. Seeing their child in hospital. Josh has the condition that i just wrote about above. Its very rare, 1 in 5000 babies will get it. It just means that the plates of the babies skull join together too early and the skull cant grow side ways. The only way to fix it is to have an operation. This is so scary for me. I had a follow up appointment on Monday because they were concerned about the shape of his head when he was born. I was expecting her to say that it will fix its self because you never imagine that this kind of thing would happen to your child. I burst into tears when she told me he will need surgery to have a piece of bone removed from his skull. After that appointment, Josh had Xrays done on his head. I had to hold him still for that. Tomorrow morning he has to have a CT scan done, Ben is coming with me. The plan is to take him there hungry, feed him and get him to sleep so that he is still for the scan. (as we know things don't always go to plan). He has been referred to the brisbane mater children's hospital to meet with a Nero surgeon. I will take his scans to that and then i guess they will decide what to do and when. I'm not sure when they will want to operate. Could be a few weeks, could be when he is 6 months. If any one has a copy of the take5 magazine from the 12th you will see on the cover there is a story about a baby who went through the same thing. If you don't have it and you are interested in what i am about to go through with my little boy i will show you one of the links i found. Thank you Karli for your help with the research!!!
This one is just a story the mother wrote and has put pictures up which are quite upsetting. I find myself with tears in my eyes at any given time.
http://theemericks.homestead.com/CS.html
And this one is information on the actual condition.
http://www.pedisurg.com/PtEduc/Craniosynostosis.htm
These are the pictures i took of Josh's head.
This is a picture i found of before and not long after the surgery on another baby.
I dont know how i will handle seeing my baby like that. I just cant wait for it all to be over and have my baby back to good health. My precious little man.
I understand that the only thing anyone can say is holey crap,are you ok? If you need to talk I'm here and all that, and i appreciate that. I understand that i'm not the only person who is emotionally effected by this and i am great full to all my friends and family who are going to be there for us through all this. I'm thankful that Josh will not remember this.
Turns out i'm about to go through what any parent dreads. Seeing their child in hospital. Josh has the condition that i just wrote about above. Its very rare, 1 in 5000 babies will get it. It just means that the plates of the babies skull join together too early and the skull cant grow side ways. The only way to fix it is to have an operation. This is so scary for me. I had a follow up appointment on Monday because they were concerned about the shape of his head when he was born. I was expecting her to say that it will fix its self because you never imagine that this kind of thing would happen to your child. I burst into tears when she told me he will need surgery to have a piece of bone removed from his skull. After that appointment, Josh had Xrays done on his head. I had to hold him still for that. Tomorrow morning he has to have a CT scan done, Ben is coming with me. The plan is to take him there hungry, feed him and get him to sleep so that he is still for the scan. (as we know things don't always go to plan). He has been referred to the brisbane mater children's hospital to meet with a Nero surgeon. I will take his scans to that and then i guess they will decide what to do and when. I'm not sure when they will want to operate. Could be a few weeks, could be when he is 6 months. If any one has a copy of the take5 magazine from the 12th you will see on the cover there is a story about a baby who went through the same thing. If you don't have it and you are interested in what i am about to go through with my little boy i will show you one of the links i found. Thank you Karli for your help with the research!!!
This one is just a story the mother wrote and has put pictures up which are quite upsetting. I find myself with tears in my eyes at any given time.
http://theemericks.homestead.com/CS.html
And this one is information on the actual condition.
http://www.pedisurg.com/PtEduc/Craniosynostosis.htm
These are the pictures i took of Josh's head.
This is a picture i found of before and not long after the surgery on another baby.
I dont know how i will handle seeing my baby like that. I just cant wait for it all to be over and have my baby back to good health. My precious little man.
I understand that the only thing anyone can say is holey crap,are you ok? If you need to talk I'm here and all that, and i appreciate that. I understand that i'm not the only person who is emotionally effected by this and i am great full to all my friends and family who are going to be there for us through all this. I'm thankful that Josh will not remember this.