Comments | brightlotusmoon: Where did you go when it crumbled?

brightlotusmoon

Where did you go when it crumbled?

Nov 16, 2013 16:23

At this point in my life, I've started shrugging it off and doing everything I can to be everything I can, if that makes sense. I can't deny any of this. I can't wish it away with whatever that magical positive thinking is supposed to do... something about asking the universe to help out? Something about deciding to change overnight and then ( Read more... )

bodies, people, chronic pain, brain, society, cerebral palsy, education, body, brain damage, fibromyalgia

Comments 3

chorus_of_chaos November 16 2013, 23:09:06 UTC

I've had people make snide comments to me and I point out to them that many illnesses are not a case where you just BAM are in a wheelchair. MS, MD, lupus (which I've recently been diagnosed with after 15 years of being told it was fibromyalgia) parkinsons, fredriechs ataxia, cerebral palsy....many of these illnesses start as seemingly minor issues and slowly over time steal away your ability to do the things you love, and eventually even the things you need to do to care for yourself. They are slow and insidious, but that does not make them any less deadly or real and that the person who just made the snide comment may have a ticking time bomb in their body just waiting to slowly start eating away at them ( ... )

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brightlotusmoon November 18 2013, 05:23:58 UTC

You are one of the very few people on the planet who knows so well, and I know, and we know. :)

I am still struggling with trying to brush off ranting tirades from people who have become convinced that I want to be in pain, that I want to get worse, that constantly talking and blogging about my conditions will magically make them worse. I'm getting there. First comes the amusement. Then comes the boredom. Then comes the lack of caring. I will know it when I get there.

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brightlotusmoon November 18 2013, 20:35:33 UTC

Yeah, that cannabis-cancer issue is very annoying. Despite the fact that some scientists have tried to document the effects of CBDs on SOME forms of SOME cancer, the main reason the FDA is quashing it is because they would have to admit that cannabis is actually useful and doesn't need to be illegal, which would require waaay to much bureaucracy and red tape and... nope. Not going to happen on a federal level. They're already trying to patent a synthetic cannabis medicine themselves, in fact, but that'll take years to push through, and won't work for everyone. So while I have all this information on why the federal government isn't on the cannabis thing yet, I know damn well that none of that information will prove useful to anybody except activists and lobbyists, and maybe some people in Colorado and Washington. :p ( ... )