In which I am politely enraged

Aug 20, 2012 17:45

And yet another email from a well-meaning stranger who insists that if only I would stop all my medications and eat certain foods for the rest of my life, I would be completely healed and all my disabilities would vanish. Ah, willful ignorance, my nemesis, we meet again ( Read more... )

food, brain, humanity, herbs, medical science, neurological disorders, supplements, science, internet, life, people, holistic, self, medical stuff, neuroscience, disabilities, pain, alternative treatments, health food, pain management, alternative remedies, herbal remedies, medication, healing, alternative medicine, body

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koemiko August 22 2012, 15:49:24 UTC
Nothing much to add really, but:

No food or combination of foods can cure medical conditions that began with brain damage from birth.

Did you get them at birth...? Or during birth? Or did it just happen as you developed? Did something happen?

I apologize if I'm being intrusive... I'm both interested in medicine (vaguely) and have a thirst for knowledge. ^^;

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brightlotusmoon August 22 2012, 19:11:09 UTC
Oh, it's fine to ask! I don't mind at all.

It is suspected that the damage began during my very premature birth, then continued in the days and weeks after my birth. My lungs collapsed several times, particularly my right lung. At that point in 1979, there was no surfactant to replace the natural compounds that would have surrounded and protected my lungs, since I was born so early in gestation. So the lack of oxygen destroyed certain brain cells and damaged other parts of my brain, resulting in white matter death, or periventricular leukomalacia. I was in respiratory distress quite often since my lungs were underdeveloped. My brain never fully developed, resulting in cerebral palsy and other damages.

Feel free to do some research and ask more questions! I love questions.

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koemiko August 23 2012, 04:33:32 UTC
Ahh... it seems like it's very difficult to diagnose. How old were you when you were diagnosed?

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brightlotusmoon August 23 2012, 13:47:55 UTC
I was two or three, I believe? I wasn't crawling properly and my limbs were spastic and twitchy. I wasn't walking properly. But it was mild compared to most cerebral palsy cases, which was why it took a while for my parents to realize something was wrong. Luckily, a doctor saw it right away.

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koemiko August 24 2012, 07:47:50 UTC
Mmm... from what I read, it's usually speech patterns that help make the diagnosis.

Still, all of that's very interesting. ^_^

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brightlotusmoon August 24 2012, 18:22:14 UTC
My speech patterns weren't really enough to make the diagnosis, since it was my body rather than my voice that gave it away.

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