Brain Tumor Potluck

Nov 19, 2009 02:14

I signed up to be on the planning committee for next year's Brain Tumor Walk. The first potluck was this last Sunday. It wasn't a formal meeting, just a casual potluck for idea gathering.

The potluck was way far ot, so I almost didn't even try to go... I got a ride, though. Glad I went. The food provided last year included bottled water, whole apples, oranges and bagels. I was disappointed with the lack of choices for people with dysphagia.

There were 8 people there. A couple had family members with brain tumors an d couple of them had been diagnosed within the last year or two. When I brought up my concerns over dysphagia friendly foods, none of them had ever thought of it.

For the record, i don't think anyone at the potluck actually had dysphagia. I guess it is one of those things that you never think of, unless you have it, though. I guess, even if you do, it's something you have to get used to thinking about.
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