May 19, 2010 21:32
Hi, all.
Yeah, I haven't updated in a while and now I have a condensed whine.
My Crohn's has flared up. It's only the third time in the eleven years I've been dealing with this disease, so all in all, my track record is pretty good. However, this still sucks. I've already done a week in the hospital, and (so far) for two weeks after I've been pretty much glued to the couch. I'm to the point where I'm starting to recognize CSI and Law and Order episodes.
Right now, low grade narcotics and a heating pad are getting me through another day that was, well, exactly the same as yesterday.
On the plus side, my skin issues that had been acting up with the Crohn's are like small-time crime: there's too much heat in the city so they're laying low and consequently going away.
So far, I've lost at least twenty pounds, meaning that when this is all said and done, I'll probably keep some of that off, not that I would ever recommend this kind of method to ANYONE.
I get stories read to me most every night.
Work is understanding enough to keep me on but not pressure me to be there, if that makes sense. They won't schedule me until I'm ready to actually work again.
Jury is still out as to whether or not my summer is shot to hell. I'm supposed to go on choir tour in a couple of weeks to Canada, by route of Cedar Point, Niagara Falls, and all kinds of adventuring with some of my good camp friends. Not sure that's going to happen.
Was planning on living at East Bay and working as a lifeguard but cannot make/am not bodily able for training. I don't exactly have a lot of gumption at the moment.
Oh, and ISU wants to give me an 'F' in one of my classes, since I couldn't do the final paper. You can bet I'm pissed as hell about that. And it's not going to fly.
In essence: right now, I'm taking a moment to indulge in negative feelings because I nearly drove myself insane last time wearing the bloody brave face. I can feel however I want to feel and however I need to feel. Usually, I go with humor and optimism, but I don't have to. Simple, but it helps me a hell of a lot.
So as to what's happening physically right now, I think I've still got something big-ish left, meaning either another stint in the hospital, some new treatment, or (I have an unsupported hunch toward) surgery. I'm still losing weight, still in pain, and pumped full of chemicals. Eating should never be so complicated.
I'm just tired in so many ways. I think the best POA is to give me a sedative and let me sleep for a week so my body can figure itself out again.
I don't like asking for it, but prayers and happy thoughts, please. I need it. I know I have a ton of people praying for me and vibing already, and I cannot tell you how much that means to me. A simple card and a quick hello really pulls me out.
Much love, all.
life