Public post update
*Hi. I'm still here. Here is a brain tumor update to the best of my abilities. Forgive the spelling errors and weird trains of thought.
*It has been over a month since my radiation treatment. It was one big dose of radiation instead of multiple, smaller doses. I can't honestly say if I am better, if the tumor is dead, or if the treatment worked.
*I won't know until 4-6 months after treatment when my next MRI is performed. It is typically a slow growing tumor so they want to give it a chance to come back or not (we are hoping not, of course).
*I'm not doing well, yet I am trying not to focus on it too much. I am having daily headaches that are quite intense, and I seem to be medicated quite a bit. I'm not sleeping properly and I am having emotional outbursts a lot. My head/neck area is always in some sort of pain.
*The constant pain is starting to get to me yet I am trying to keep it at bay as much as I can.
*I am still walking with a cane and will be for some time.
*I am having quite a bit of hearing issues in my left ear, and it seems to be spreading to my right.
*I am trying everything I can to keep the tumor from coming back. I am watching what I eat and have pretty much cut out sugar and carbs. I'm on meds and herbal meds as well. I am trying to force myself out of the house for little periods of time just to feel like I am apart of my environment. I am coloring and trying to read books again to keep my mental self in check. Every once in a while someone will come by to see me or leave me a message to check on me and that helps keep me happy for a few days.
*Noise bothers me. Light bothers me. The stupidest stuff bothers me. The radiation re-activated my surgery area so I am feeling the effects of radiation and my surgery all over again. I am crippled a lot of days; some days I am okay. I am trying. I really am.
*I will be calling my oncologist next week to discuss the constant issues I am having. I am hoping he will refer me to a good neurologist since I don't have one (only have a neurosurgeon). My regular doctor is helping me with pain management meds yet I dunno how long he can do that.
*Ummm......that's it for now. I'm not in a good head space today to really write a lot down. For those on my friends list I will start posting again regularly in the next few days so that I can document everything since my memory is shot.
*Much love.
*It has been over a month since my radiation treatment. It was one big dose of radiation instead of multiple, smaller doses. I can't honestly say if I am better, if the tumor is dead, or if the treatment worked.
*I won't know until 4-6 months after treatment when my next MRI is performed. It is typically a slow growing tumor so they want to give it a chance to come back or not (we are hoping not, of course).
*I'm not doing well, yet I am trying not to focus on it too much. I am having daily headaches that are quite intense, and I seem to be medicated quite a bit. I'm not sleeping properly and I am having emotional outbursts a lot. My head/neck area is always in some sort of pain.
*The constant pain is starting to get to me yet I am trying to keep it at bay as much as I can.
*I am still walking with a cane and will be for some time.
*I am having quite a bit of hearing issues in my left ear, and it seems to be spreading to my right.
*I am trying everything I can to keep the tumor from coming back. I am watching what I eat and have pretty much cut out sugar and carbs. I'm on meds and herbal meds as well. I am trying to force myself out of the house for little periods of time just to feel like I am apart of my environment. I am coloring and trying to read books again to keep my mental self in check. Every once in a while someone will come by to see me or leave me a message to check on me and that helps keep me happy for a few days.
*Noise bothers me. Light bothers me. The stupidest stuff bothers me. The radiation re-activated my surgery area so I am feeling the effects of radiation and my surgery all over again. I am crippled a lot of days; some days I am okay. I am trying. I really am.
*I will be calling my oncologist next week to discuss the constant issues I am having. I am hoping he will refer me to a good neurologist since I don't have one (only have a neurosurgeon). My regular doctor is helping me with pain management meds yet I dunno how long he can do that.
*Ummm......that's it for now. I'm not in a good head space today to really write a lot down. For those on my friends list I will start posting again regularly in the next few days so that I can document everything since my memory is shot.
*Much love.