Back Again
Feeling rather agitated because I haven’t written anything here for over 10 years and I never really wanted to give up livejournal. My life has remained chaotic since I was diagnosed with MS and here I am carrying on as best I can. I am now wheelchair bound and I have a catheter due to my Neurogenic bladder. I am trying to improve the quality of my life by changing my diet and giving away soft drink (soda) almost totally. I was addicted to Pepsi Max, but have not had it for ten days now. I was getting too many urinary tract infections and I had so much sediment in my catheter bag. It felt as though my granddaughter had brought in her sand pit and deposited it in my drainage bag. The absence of Pepsi Max has improved this and I am feeling much better in myself. However I have a long way to go and I found myself feeling anxious about everything last night. I really struggle to keep myself motivated, so I want to at least write a post each week and not give up without making an effort.
I have carer’s who come in twice a day, to shower me, wash my hair and attend my needs. Most are lovely, but a few of them are not very sympathetic to my needs. I need a special air cushion for my powerchair, as the cushion I have is moulded foam and it’s hard and I am in a lot of pain after barely 5 hours. I fell off a chair about 8 years ago and shattered my coccyx ( tail bone) and it is being aggravated by my cushion. A few of my carer’s feel I need to put up with it, but as they are not in my position I still want a new cushion. The N.D.I.S (National Disability Insurance Scheme) are supposed to review this need.... but they keep procrastinating and I am just not impressed with them.
The agency that sends my carer’s are not easy to deal with either, they cancel my service at the drop of a hat. I have had a year full of stress and really I need a break from their crap. If I hear one more word about occupational health and safety I will scream.
Two years ago my younger daughter Becky had a baby girl she named Talia Ivy Rose and she is a treasure. Becky and the babies father separated this year. He was a waste of space. We will not discuss him. Talia is a delight, but she is cheeky. At the moment they are living here, but will move down the South Coast eventually.
I have carer’s who come in twice a day, to shower me, wash my hair and attend my needs. Most are lovely, but a few of them are not very sympathetic to my needs. I need a special air cushion for my powerchair, as the cushion I have is moulded foam and it’s hard and I am in a lot of pain after barely 5 hours. I fell off a chair about 8 years ago and shattered my coccyx ( tail bone) and it is being aggravated by my cushion. A few of my carer’s feel I need to put up with it, but as they are not in my position I still want a new cushion. The N.D.I.S (National Disability Insurance Scheme) are supposed to review this need.... but they keep procrastinating and I am just not impressed with them.
The agency that sends my carer’s are not easy to deal with either, they cancel my service at the drop of a hat. I have had a year full of stress and really I need a break from their crap. If I hear one more word about occupational health and safety I will scream.
Two years ago my younger daughter Becky had a baby girl she named Talia Ivy Rose and she is a treasure. Becky and the babies father separated this year. He was a waste of space. We will not discuss him. Talia is a delight, but she is cheeky. At the moment they are living here, but will move down the South Coast eventually.