More on my letter to the church about MCS

[aspiemama]

In this entry, I mentioned that my letter to the Ensign had been forwarded to the manager of disability resources for the Church.  Surprisingly (since I have long since given up on humankind where this issue is concerned, unfortunately), he responded ...

Comments

MCS

[anonymous]

I am so glad to see a response from the church on this issue. I have struggled with MCS for almost 20 years. I was so ill at one point that I could not go anywhere--the price to my health was too high. A week or more in bed was not worth it. I was rarely able to attend any church meetings.

I have experienced some healing since then but still need to be very careful. I most often spend sacrament meeting in the foyer and leave afterward. Sometimes I can't make it through the entire meeting or know that if I go at all I won't be able to make it to work the next day or two. As I support myself and my son, I must work.

I attended a ward in California once where the notice was posted in the building and in the bulletin. It was a joyful and wonderful experience to be able to sit through the entire meeting and feel the Spirit in full--not distracted by illness.

Many people in my extended family suffer from MCS at some level. I am sure several of us would be willing to share our experiences/knowledge if it would be helpful.

Thank you for your efforts in this. I, too, had almost given up on humankind on this issue. Thanks for the hope!

Christine Spencer
christinefw@hotmail.com

PS your Aunt Joan sent me your link.

Re: MCS

[aspiemama]

I know she did ... she copied me on the email. Thanks for your comment. What we need to do is gather all the MCS sufferers we can find together and start campaigning actively with the church as well as searching for any research on the topic that we can find to support our experiences. The more members of the Church they hear from, and the more research we can back it up with, the more likely that this will be addressed by the brethren. It would help immensely if you could get as many people as you can to email Brother Phillips.

I hope together we can make a difference here. We certainly can't, any of us, do it alone!