Email from Generation Rescue (Jenny McCarthy's group)?!

Jan 19, 2009 12:40

Did anyone else receive an email from Generation Rescue? One just landed in my inbox. I'm a member of a few autism-related yahoo groups, as well as a new member of autism.change.org. I'm really curious as to how Generation Rescue got my email address. Obviously, they thought I had an interest in autism, (or, more likely, some random software linked ( Read more... )

curebies, username: em - ez

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errantpenny January 19 2009, 22:26:45 UTC
But I really wish most autism money would be used to actually *help* us while a smaller amount is used for research.

Exactly! The autism research funding "pie" cannot be that big, so I wish a bigger slice was allotted to finding optimum services, education programs, therapies, etc.

I wonder, do I sound like an activist? I don't really think I am one--not yet, anyway. This is all so new to me. I had no idea that I was autistic until two years ago, and, I sheepishly admit, I was little interested in autism until it directly concerned me. I also know that I am heavily influenced now by the writings and speeches of leaders in the neurodiversity movement. "Influenced", yes, but I don't think I'm just parroting (this stems from questions I've been asking myself).

Stereotyping, dehumanization, propaganda, lack of interest in and concern for the wants and needs of individuals--these are things that always get me riled up, no matter what the issue, whether it concerns me directly or not. Media depiction of autistics (especially in fictional media) is a growing interest of mine. I think, somehow, that a critical lack of accurate portraits of autistics in the public's consciousness...is a reason for the lack of interest in and lack of support for research into services and improvement in quality of life. It's like autistic people aren't members of society. They're only "stolen children", so their parents are the ones whose needs to be met.

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errantpenny January 19 2009, 22:38:04 UTC
It disturbs me how little voice they attribute to us; as though, by virtue of our condition, we're not fit to self-analyze or make judgements about our own needs.

Yes, I agree with you. Very well said.

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