Oct 18, 2005 21:57
I'm really tired from the drive. 2 and a half hours each way. I drove the whole time because Tim was tired from working cat eye. We left here at 9am, had to stop and get breakfast, and get my shot at 9:20, then back onto the highway. Arrived in Baltimore around 11:30ish, and got lost finding the hospital. Finally found the right road and parked. I was at the doctors office bt 12:15, and was told that I would have to come back later at my appointment time. So Tim and I ran and got lunch. I had wild seasoned rice and roast beef with navy bean soup. Tim had a bottle of pepsi.
So after lunch and walking around (John Hopkins has a Sushi bar can you believe it?) We went upstairs at 1:45. My appt was at 2:15. The doctor called us back and we had our meeting. He explained to me that I have Lupus anti-coagulation disease. Its NOT actually full blown Lupus, but its part of it. The part that makes my blood clot. He explained that they still don't know how people get it. But that somehow in the last 6 years I got it. Normally my body would just clot like crazy, and I may never know. But because I was prego my body also over clotted, self defence for bleeding to death during child birth. The two compined, caused that clot in my pelvis, alerting us to the disease, saving my life. The lovenox (blood thinner shots) I take twice a day does not have any effect on the baby at all. It can't get to the baby. If I were to take Heprin it would and the baby would also have thin blood. But the biggest risk to the baby he said .. was something happening to me and I get a clot in my lung. He seems to think that I need a planned c-section. I'm scared to death about that. If I go into labor I can bleed to death and cant get any meds at all if I needed an emergancy cut or c-section. Because with my blood being thin, they will NOT give me an epidorial, so they would have to plan it all out. Scares me to death really. I'm so afriad of bleeding to death, this is really scary shit here ya know.