Sep 26, 2018 09:43
Without getting too graphic, I'll just say that for the past week or so, I've been seeing multiple signs that my Crohn's Disesae is coming out of remission. This, literally right after I was told by my gastro that the colonoscopy showed I was *in* remission, even at the microscopic level. Which I probably was, at the time. But now I don't think I am. And I'm terrified. First off - what could they possibly do to determine this? I've just *had* a colonoscopy, which is about as thorough as you can get, exam-wise. And there's a small part of me that wonders if the rigors of the exam somehow triggered a relapse. (Might not be possible, but I have to wonder.) Secondly - I'm on the only medication that remained to me to take. Asacol: doesn't work. Steroids: don't work. Biologics (Humira, Remicade): allergic reactions ranging from hives to (eventual) eyesight loss, so I doubt they'll want to try me on any other variety. The Mercaptopurine, which I've been on since, hmmm, 2013? - that's been my last-ditch option.
I've got a job, dog, kids, college visits, I'm responsible for feeding seven people on a near-daily basis, I've got a half marathon in 5 weeks. I've always known that this disease could rear its ugly head at any time, but it's so easy to get lulled into a sense of safety when I've been in remission with only one flare-up since 2007.
And now I'm really scared.
crohns