the hip
it turned out to be possibility one, which was both best and worst in someways, it's good because it's a diagnosis I already know stuff about, so I knew what questions to ask etc, it's bad, because it pretty much does mean surgery. There is the option of cortisone shots, but the results are very variable, the doctor said he'd seen results range from pain relief for 1 day, upto a year. Fearful though I am of surgery, I'm almost as fearful for cortisone shots, having had a needle in there 9 days ago and still suffering some discomfort, I'm not keen on a couple of weeks discomfort for an average of 3mths relief, if I'm one of the lucky ones. Cortisone being what it is, there does tend to be greater discomfort on administration, having had steriod injections in pregnancy, the injection site is jolly uncomfortable for several days. Plus, being honest, I only got through last weeks needle experience because I had no time to worry about it, but even in the few minutes warning, despite trying my hardest to relax, I still got worked up and during it, it was a great struggle to stay still and not scream the place down, I sweated buckets during it - I honestly don't thing I can do something like that again, without something to help me relax - and that kind of thing is difficult to arrange here, it's quite common place in the UK, they often do such procedures in theatre and put a line in as a matter of course, in case you need help in staying calm.
Which leaves surgery, it's quite an uncommon procedure apparently, luckily there is someone who does it locally, but as a newish procedure, there is great need for it, compared to the number of surgeons that can do it, so I may have to wait a while to get an appointment to even see the guy, then who knows how long before the surgery. The longer you wait for something, the more hyped up it can get, the more hope you put into it working out.
The worst thing is, that if this is sucessful, it only sorts out my hip, I have a lot less symphysis pubis pain these days, but it's still significant, I might remove the limitation of the hip pain, which is the biggest issue these days, but it won't be a magical cure.
My other gripe is that I don't know when this happened, it could have been giving birth, or it could have been dislocating it in May last year, either way, medical help was sort and this was not diagnosed, particularly when I dislocated it, the GP I saw (not my regular one) sent me to the hosptial in good faith, I don't know what she thought it was, but I got the impress she thought it was more than the hospital investigated, but we had no come back on that, in fact we faught hard for further investigation or more specialised evaluation that day and were told to wait 8 weeks, which we did, but my GP tried to refer me and the referals were refused, Ehlers-Danlos syndrome was diagnosed, but the hip was never even given a thorough examination, EDS was considered the complete diagnosis.
So my emotions are all over the show, I'm anxious about the future, but angry about the past.
Which leaves surgery, it's quite an uncommon procedure apparently, luckily there is someone who does it locally, but as a newish procedure, there is great need for it, compared to the number of surgeons that can do it, so I may have to wait a while to get an appointment to even see the guy, then who knows how long before the surgery. The longer you wait for something, the more hyped up it can get, the more hope you put into it working out.
The worst thing is, that if this is sucessful, it only sorts out my hip, I have a lot less symphysis pubis pain these days, but it's still significant, I might remove the limitation of the hip pain, which is the biggest issue these days, but it won't be a magical cure.
My other gripe is that I don't know when this happened, it could have been giving birth, or it could have been dislocating it in May last year, either way, medical help was sort and this was not diagnosed, particularly when I dislocated it, the GP I saw (not my regular one) sent me to the hosptial in good faith, I don't know what she thought it was, but I got the impress she thought it was more than the hospital investigated, but we had no come back on that, in fact we faught hard for further investigation or more specialised evaluation that day and were told to wait 8 weeks, which we did, but my GP tried to refer me and the referals were refused, Ehlers-Danlos syndrome was diagnosed, but the hip was never even given a thorough examination, EDS was considered the complete diagnosis.
So my emotions are all over the show, I'm anxious about the future, but angry about the past.