The shape of things to come

[ann_gwish]

I go give my last (hopefully my last) sacrifice of blood and urine tomorrow (I swear they must have a whole shelf with my name on it by now). And then an Ultrasound on Friday. A woman's exam next Friday. And then we're pretty much done. I'm going to do the sleep study, but it's not really a necessity, more icing on the cake of disaster. We're all

Comments

[couri]

LOL @ vegetables.

So have they got things more or less equalized with treatment and medication and things?

Regardless, glad you seem to be feeling better :D There's always a period of adjustment with crap like this, but you seem to be dealing with that admirably. Better than most of us would :)

[ann_gwish]

I have nightmares about cauliflower *shudder*

We haven't actually gotten to the treatment stage yet. I have one more test tomorrow and the last one next Friday. I do hope they get started soon though; it seems to get harder by the day. But, a sense of humor goes a long way. A giant bottle of morphine would go longer, but hey, all things to those who wait....

[couri]

A giant bottle of morphine would go longer

Exactly! I've had the same feeling many, many times... I know with my autoimmune doohickie (I think that's the technical term, by the way), when we finally figured out what sorted it out, I was able to forget about it and get on with things, which was nice, but there's usually a stage of 'crap' to go through before you gets to that point ...it took awhile. I don't know if it's a healthy attitude or not, but now I just tend to forget I have it. It makes life easier. Just like avoiding cauliflower and--my idea of what they serve in hell--lima beans.

Oh, god, it's too early in the morning to think about lima beans. My stomach just trembled.

[ann_gwish]

It's always too early to think about lima beans *ick*!

I have my final meeting on Friday so I'm really hoping for a fast referral to a specialist. This has been going on for lot longer than I thought; all the symptoms I thought were not connected, all the aches and pains and bouts of sickness, I just can't believe how bad it's getting and how fast I'm wearing down. While I am not thrilled at the idea of this doohickie being a part of my life forever; I am relieved to know I'm not crazy, and I'm not alone. I am just trying to make it through, day by day, until we can start with treatment; at this point I just want anything, anything at all to make this easier. I know it might take a while to find the right combination to work for me, but once I get to that point, I know I'm strong enough to deal with this and not let it take over my life.

[couri]

Hope it went well ...I know what you mean about the variety of symptoms and thinking you're going crazy ...I had that first with the FMF and then with the epilepsy ..I really should have learned by now. I ought to (along with the hideously ugly medical alert bracelet I was forced to order. They don't make them pretty; they're horrendous) get something engraved that says 'I'm Not Crazy!' so the next time something goes haywire I'll just go to the doctor straightaway.

From what you've just said (although I don't know you all that well ..I think we spoke once or twice last year? lol! :) ) in the last paragraph about getting to the point of being strong enough to deal with it and not letting it take over your life, it sounds as though you're already pretty much there and you ought to be proud of yourself for having that attitude. Most of us weren't nearly that sensible or down-to-earth. :D

PS--I find, when something's growing in the fridge or the sink, clubbing it to death is the best way to go.