As a few of you have asked how Julie is doing
She's ok. Had a checkup with her consultant last week which showed reasonable white blood cell counts and plasma levels (although her iron levels are a bit low). Had a meeting with her supervisors after handing over 11,000 words for checking, which went ok.
Still stressed in general, but her energy levels are much higher on Nilotinib than they were on Imatinib, but not back to normal human levels. We were able to go shopping for two hours, which would have been unthinkable a few months ago.
She's still tired all of the time though, and her life largely consists of PhD, being collapsed on the sofa, and occasionally shooting things with me in Borderlands 2. She's pretty fed up with the situation, but it's been a lot worse.
Original post on Dreamwidth - there are
comments there.
Still stressed in general, but her energy levels are much higher on Nilotinib than they were on Imatinib, but not back to normal human levels. We were able to go shopping for two hours, which would have been unthinkable a few months ago.
She's still tired all of the time though, and her life largely consists of PhD, being collapsed on the sofa, and occasionally shooting things with me in Borderlands 2. She's pretty fed up with the situation, but it's been a lot worse.
Original post on Dreamwidth - there are
comments there.