Fuck them and their little dogs, too...
Mark L____ came out to do the assessment for home care for me a few weeks ago. U_____ from Sensory Support Services had made the referral. Anyway, he came out and we discussed what I needed help with versus what I could do on my own. We had a great conversation about literature, as well, but that's beside the point. Before he left I asked if he wouldn't mind sharing what his recommendations would be. He said that he was going to request 2 hours for me each day. He did add (and I was already aware) that what he recommended and what I'd actually get might not be the same thing.
Anyway, it's been a few weeks since and I've been getting worse and worse (you should see the pile of laundry that is only there because I'm unable to carry it to the washroom only a few yards outside my door). So, yesterday I get a call from Mark and begged for him to have good news for me. It was not to be. His supervisor had simply said "No" to everything. Even he was astounded. I was near to tears. I've always tried to do as much as I can for myself but when the things I can't manage are staring me right in the face... taunting me... I feel like a complete and utter failure. I asked if there was any way to challenge the decision. He said it would likely have to take the form of a complaint (I'm getting good at those, now. LOL) but that he would support my case for a reversal.
I can't take this! After what happened on Saturday night...
I went to the pantomime at the Millenium Forum. It was Peter Pan. There were 11 of us, total, with 3 of us (myself included) being registered blind (J_____ is totally blind). We've jokingly nicknamed ourselves the Three Blind Mice. Anyway, it was great. The show was fantastically funny and the man playing Peter Pan... damn that fella has a voice on him! The best part came when Wendy was telling the Lost Boys a story... trying to get John and Michael to remember their parents. She began, "Once upon a time there was a man and a woman; Mr. Darling and Mrs. Darling. And guess what they had?" here one of the Lost Boys pipes up with "Three Blind Mice?" The three of us were nearly dying of laughter while those around us looked on as if to say, "It wasn't THAT funny." So, all was grand until about five minutes before the end of the show when Pan and Hook were fighting one another... Insert strobe lighting and cue Roisín having a grand mal seizure. So, my great night out with people I truly feel comfortable with ended up with me in hospital and they'll likely never want to go anywhere with me again or want me around at all. And no, I'm not having a pity party... I only just found these friends and I don't want to lose them already... and especially not like this.
Anyway, so here's me trying to just take care of the basics... Look after Drew, take my tablets and, well, that's about it. The rest of the time I'm lucky if I can get out of bed and/or stand up straight.
I know this will pass. It always does. But in the meantime I feel like dog doo that's been steam-rolled, scraped up off the pavement, put on a paper plate and reheated in the microwave. Yep, that about describes it nicely. Now, I've got to go lay down again.
P.S. Ignore all of the above. I just needed to get it out of my system.
Anyway, it's been a few weeks since and I've been getting worse and worse (you should see the pile of laundry that is only there because I'm unable to carry it to the washroom only a few yards outside my door). So, yesterday I get a call from Mark and begged for him to have good news for me. It was not to be. His supervisor had simply said "No" to everything. Even he was astounded. I was near to tears. I've always tried to do as much as I can for myself but when the things I can't manage are staring me right in the face... taunting me... I feel like a complete and utter failure. I asked if there was any way to challenge the decision. He said it would likely have to take the form of a complaint (I'm getting good at those, now. LOL) but that he would support my case for a reversal.
I can't take this! After what happened on Saturday night...
I went to the pantomime at the Millenium Forum. It was Peter Pan. There were 11 of us, total, with 3 of us (myself included) being registered blind (J_____ is totally blind). We've jokingly nicknamed ourselves the Three Blind Mice. Anyway, it was great. The show was fantastically funny and the man playing Peter Pan... damn that fella has a voice on him! The best part came when Wendy was telling the Lost Boys a story... trying to get John and Michael to remember their parents. She began, "Once upon a time there was a man and a woman; Mr. Darling and Mrs. Darling. And guess what they had?" here one of the Lost Boys pipes up with "Three Blind Mice?" The three of us were nearly dying of laughter while those around us looked on as if to say, "It wasn't THAT funny." So, all was grand until about five minutes before the end of the show when Pan and Hook were fighting one another... Insert strobe lighting and cue Roisín having a grand mal seizure. So, my great night out with people I truly feel comfortable with ended up with me in hospital and they'll likely never want to go anywhere with me again or want me around at all. And no, I'm not having a pity party... I only just found these friends and I don't want to lose them already... and especially not like this.
Anyway, so here's me trying to just take care of the basics... Look after Drew, take my tablets and, well, that's about it. The rest of the time I'm lucky if I can get out of bed and/or stand up straight.
I know this will pass. It always does. But in the meantime I feel like dog doo that's been steam-rolled, scraped up off the pavement, put on a paper plate and reheated in the microwave. Yep, that about describes it nicely. Now, I've got to go lay down again.
P.S. Ignore all of the above. I just needed to get it out of my system.