Life truly has a way of putting things in perspective. After the flurry of seizures that kept me awake on Wednesday night and the pressure headaches that followed yesterday, I started to fall into the "pitiful me" trap. It doesn't happen to me very often, thankfully, but when it does, watch out! And just to make sure that I don't languish in the
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I'm sorry to hear about your uncles, and also about how you've been feeling lately. Hang in there, and take care of yourself.
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You know, I think that forgetting about this blog for two years may have been a blessing because it is quickly becoming an easy outlet for the frustrations of dealing with the Chiari. I am so much more than this damn affliction and need to remember that always, even on the worst of days.
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I still say that having an outlet and letting your family know how you feel is better for you and them than bottling it up and exploding as you said before. Constant self-pity isn't a good thing. Having an outlet and expressing completely human and natural feelings is a good thing. There's a balance, Sweetie, and going overboard on the stoic side is just as bad for you as dwelling on how bad you feel 24/7. I balance out the self-pity with humor, and that keeps me going. You're putting up a barrier b/t yourself and your family, and it drives them crazy b/c they love you and want to be close to you and be there for you, but the stoic routine just pushes them away.
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