Apr 15, 2005 10:09
I went to the doctor this morning. I really need a PCP. That way I can have someone help me with pain management and stuff. Anyways, Ill be staying on the enbrel, at least 2 more months, and then we will see if its helping. If not, Ill be starting something else, but its such a pain in the ass and these drugs are so expensive....
Anyways, I just want off the prednisone, I hope thats possible. She also said that I always have side effects because people with fibromyalgia have drug sensitivities. Intersesting. She also said I will proabally never be pain free and Ill have to try to work through it. Lovely. She says my rheumatoid factor is negative, but it could be positive within the next 2 years. If it never turns positive, Ill have less risk for joint damage and deformation, but makes it a bit more difficult to treat.
She suggested that I do small steps towards going back to school. Test my limits. Take one course and figure out how to work it. It was a great suggestion, because how else will I know unless I try?
If its to much and I just kind find a way to work through it, Ill stop.
She asked me if I was depressed..I was like, yeah, this has been so devastating. Ive always been someone who measures my self worth by what I can accomplish and how productive I can be. This disease has taken a lot from me. I hope I can get it back. I hate having hope.