the sky is yours
so any things to talk about. yet again i'm not sure where to start
sitting in my bed all cozy and comfy listening to CD's I received in the mail today from my love. Stuart sent me 5 discs full of music for different occasions. right now i am listening to a cd full of reasons that i fell in love with him in the first place. songs that make me smile and my heart swell.
oh goodness i am so lucky.
today i fell in love.
i fell in love with a dress.
my friend Chris ( chris_stathers ) made me a dress that is my perfect dress.
it is red and black and white and polka dots on polka dots and strapless and fits me better than any dress has ever fit me in my life. i mean, it's strapless and i didn't pull or tug at it once all day. and i never even tried it on before today! i gave chris my measurements over the phone and she managed to make this amazing dress that is super comfortable! i'm so happy with it i'm going to wear it to the closing night gala! i can't wait to show you all photos but with all the pictures that were taken of me today i, of course, don't have any right now. i'll have to wait until someone posts them on FB.
i even stopped by my aunts house on my way home just to show her and my uncle dave. my uncle dave isn't doing very well these days but when he saw me in that dress he was all smiles and kept telling me how beautiful i looked and half whisteling with joy. he's going to try and come to the screening tomorrow. i told him we could compete with our wheelchairs but that I would win because my wheelchair is bright red.
oh yeah. i have a wheelchair now. it's bright red. by chance!! how lucky am i? not to get around all the time just for walking more than 50 steps. i'm fine in the house but getting around town is a bit tougher.
i don't like to be in it though. always looking up. i guess it gives me more perspective on the world but i have to say, i like being 5'9". and i don't like not being in control. having someone else decide which way i'm facing. don't get me wrong, i'm grateful to have family who helps me by pushing the wheelchair and dragging it in and out of cars. everyone has gotten used to carrying my oxygen for me so that i can walk around in crowds and different people take turns having me on a leash. they say they like it because then i can't run away and dissapear on anyone...and they say it slows me down and makes me chill a little bit.
but...can i be honest and selfish here?
i love the strut.
i love walking down the street at a fast pace, in heels, sometimes with my ipod in my ears to a beat.
and just....strutting. dancing. a little kick to my step.
it's what makes me happy alone. day or night just walking in a city...light passing me by, cars, all the colours of the city blending as i move through space, in control and on top of the world.
and now i can't strut. i can barely walk.
my friends make me do the 'wedding procession' speed walk...step pause step pause step pause.
it's enough to make me want to skip down my aisle when i'm well and getting married.
because i will get well and i will get married.
i will.
new topic.
i had the first screening today.
i'm not quite sure what to say about it yet.
i'm very very exited for tomorrow's as well. there are two tomorrow. and then the after party. i'm worried about making it through all this adventure. i just have to remind myself to slow down and take time outs.
guess what??
a girl contacted me on LJ and told me about her journey through 2 double lung transplants. that's right. not ONE but TWO!! and she is now 6 years post SECOND double lung transplant and is doing well. that info has helped me so much this week. hope. hope is all i need. i am so grateful for hope.
Here are some photos from this last weeks gala (taken from mish's FB)
Mish and I getting ready!
She actually let me do her hair and make-up! Fun!!! tomorrow i think i'm going to get ready with Quinn and Ming and Hunter....best time ever!
Mish and her bf (aw!) and I
Malcolm Parry the Vancouver Sun gossip columnist
Saucy!
Mish and Lindsay our publicist (she is AWESOME!! as you can tell by all the press!)
At the Canadian Images Gala with Terry, one of the programmers from VIFF (he's responsible for picking our film!) and a few of his friends that I was lucky enough to meet!
And here's on of Justin and I when we made friends with the 2 guys who invented the iphone app for VIFF. (ps its sweet. wish i had an iphone)
And some bonus pictures from Mish and Marks trip to the Calgary International Film Festival
They stayed at Kassia's house!
Must go sleep. Get ready for tomorrow.
Love to all.
sitting in my bed all cozy and comfy listening to CD's I received in the mail today from my love. Stuart sent me 5 discs full of music for different occasions. right now i am listening to a cd full of reasons that i fell in love with him in the first place. songs that make me smile and my heart swell.
oh goodness i am so lucky.
today i fell in love.
i fell in love with a dress.
my friend Chris ( chris_stathers ) made me a dress that is my perfect dress.
it is red and black and white and polka dots on polka dots and strapless and fits me better than any dress has ever fit me in my life. i mean, it's strapless and i didn't pull or tug at it once all day. and i never even tried it on before today! i gave chris my measurements over the phone and she managed to make this amazing dress that is super comfortable! i'm so happy with it i'm going to wear it to the closing night gala! i can't wait to show you all photos but with all the pictures that were taken of me today i, of course, don't have any right now. i'll have to wait until someone posts them on FB.
i even stopped by my aunts house on my way home just to show her and my uncle dave. my uncle dave isn't doing very well these days but when he saw me in that dress he was all smiles and kept telling me how beautiful i looked and half whisteling with joy. he's going to try and come to the screening tomorrow. i told him we could compete with our wheelchairs but that I would win because my wheelchair is bright red.
oh yeah. i have a wheelchair now. it's bright red. by chance!! how lucky am i? not to get around all the time just for walking more than 50 steps. i'm fine in the house but getting around town is a bit tougher.
i don't like to be in it though. always looking up. i guess it gives me more perspective on the world but i have to say, i like being 5'9". and i don't like not being in control. having someone else decide which way i'm facing. don't get me wrong, i'm grateful to have family who helps me by pushing the wheelchair and dragging it in and out of cars. everyone has gotten used to carrying my oxygen for me so that i can walk around in crowds and different people take turns having me on a leash. they say they like it because then i can't run away and dissapear on anyone...and they say it slows me down and makes me chill a little bit.
but...can i be honest and selfish here?
i love the strut.
i love walking down the street at a fast pace, in heels, sometimes with my ipod in my ears to a beat.
and just....strutting. dancing. a little kick to my step.
it's what makes me happy alone. day or night just walking in a city...light passing me by, cars, all the colours of the city blending as i move through space, in control and on top of the world.
and now i can't strut. i can barely walk.
my friends make me do the 'wedding procession' speed walk...step pause step pause step pause.
it's enough to make me want to skip down my aisle when i'm well and getting married.
because i will get well and i will get married.
i will.
new topic.
i had the first screening today.
i'm not quite sure what to say about it yet.
i'm very very exited for tomorrow's as well. there are two tomorrow. and then the after party. i'm worried about making it through all this adventure. i just have to remind myself to slow down and take time outs.
guess what??
a girl contacted me on LJ and told me about her journey through 2 double lung transplants. that's right. not ONE but TWO!! and she is now 6 years post SECOND double lung transplant and is doing well. that info has helped me so much this week. hope. hope is all i need. i am so grateful for hope.
Here are some photos from this last weeks gala (taken from mish's FB)
Mish and I getting ready!
She actually let me do her hair and make-up! Fun!!! tomorrow i think i'm going to get ready with Quinn and Ming and Hunter....best time ever!
Mish and her bf (aw!) and I
Malcolm Parry the Vancouver Sun gossip columnist
Saucy!
Mish and Lindsay our publicist (she is AWESOME!! as you can tell by all the press!)
At the Canadian Images Gala with Terry, one of the programmers from VIFF (he's responsible for picking our film!) and a few of his friends that I was lucky enough to meet!
And here's on of Justin and I when we made friends with the 2 guys who invented the iphone app for VIFF. (ps its sweet. wish i had an iphone)
And some bonus pictures from Mish and Marks trip to the Calgary International Film Festival
They stayed at Kassia's house!
Must go sleep. Get ready for tomorrow.
Love to all.